I'm new here. Been sick with ME for 22 months after a flu shot gone wrong...very wrong. Anyways, Dr. Hyde told me that most of his flu shot induced victims of ME seem to improve over time. The HepB vaccine ones present with a more severe form of ME. Well it has been 22 months and I guess i have improved in some ways but the overall trend has been down, not up. Perhaps its just the cyclical nature of the illness, but I am beginning to think his statement was just lip service. I can still work a few hours a day and socialize if i need to, but it is gruelling and becoming increasingly difficult. Anyways...
For those of you who have been around a while and seen alot of what ME brings to the table in terms of differences in people, genders, symptoms, onsets, body type, age, years of illness etc Do you see a pattern or "type" of person who fairs better than others? Both physically and mentally. Are there certain symptoms that scream progressive disease and others not? Do the skinny hypermobile type people like me do worse overall? Or can we improve also. What about time frame for illness. If one is lucky enough to improve does it take many years? And is that road a bumpy one? Meaning, its not steady improvement but a cyclical one.
Of course specific treatments can answer this but i was just wondering in general...
Anyways, just curious as I am still at that desperate to recover or substantially improve stage.
Best,
T
For those of you who have been around a while and seen alot of what ME brings to the table in terms of differences in people, genders, symptoms, onsets, body type, age, years of illness etc Do you see a pattern or "type" of person who fairs better than others? Both physically and mentally. Are there certain symptoms that scream progressive disease and others not? Do the skinny hypermobile type people like me do worse overall? Or can we improve also. What about time frame for illness. If one is lucky enough to improve does it take many years? And is that road a bumpy one? Meaning, its not steady improvement but a cyclical one.
Of course specific treatments can answer this but i was just wondering in general...
Anyways, just curious as I am still at that desperate to recover or substantially improve stage.
Best,
T