2Cor.12:9
Senior Member
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Hi all. Has anyone else had this experience?
I was dx'd with Pulmonary Hypertension recently after having an echocardiogram for my more than usual heart palps. Since PH is a very serious disease and can be either primary or secondary to another condition, it's been a mad dash to see the specialists (cardiologist, rheumatologist and pulmonologist) to undergo more tests, scans, etc to get to the bottom of it.
First I was given an overnight oxygen test which showed night time hypoxia and I was put on an oxygen concentrator at night. The oxygen has eliminated most of my heart palps, has helped greatly with panic attacks, and has given me more stamina at the grocery store. It hasn't helped much with my overall CFS fatigue though. (I've had ME/CFS for 32 yrs).
I still don't have the final answer as to what's causing the PH or the hypoxia, if there will ever be an answer, but we've eliminated some of the potential causes such as PAH (the most serious form of PH), heart failure/disease, lung cancer and blood clots, and autoimmune connective tissue diseases. Sleep apnea is one possibility that I have not been tested for yet.
I'll see the pulmonologist this week to find out more. I will be mentioning that I made an interesting discovery after starting the oxygen at night. I had a hard time getting the fresh oxygen with the cannula because my nose gets very plugged up in the night. My rhinitis doesn't normally occur in the daytime, although I've had chronic post nasal drip for decades. I've seen umpteen ENT's to no avail.
I had not realized how much my night time nasal congestion had effected my breathing at night until now - only knew that my breathing was more shallow than normal.
I started taking Flonase and mucinex last week and have experienced a huge decrease in day time post-nasal drip and night time congestion. I can actually breath well at night now. I'm hoping this might ultimately solve my problem - but will have to wait and see.
Dr. Google turned up a number of studies linking rhinitis to hypoxia and pulmonary hypertension. Rhinitis can be either allergic, non-allergic, or a combination of both. Patients with ME/CFS frequently have one or the other or both.
I don't know if this will end up being the answer, but it's been interesting to note just the same.
Is pulmonary arterial pressure affected by allergic rhinitis with nasal obstruction?
https://www.ncbi.nlm.nih.gov/pubmed/18035798
Is Pulmonary Arterial Pressure Affected by Allergic Rhinitis with Nasal Obstruction?
https://www.researchgate.net/public...d_by_allergic_rhinitis_with_nasal_obstruction
Pulmonary hypertension evaluation by Doppler echocardiogram in children and adolescents with mouth breathing syndrome
https://www.sciencedirect.com/science/article/pii/S1808869416301070
Nonallergic Rhinitis, With a Focus on Vasomotor Rhinitis Clinical Importance, Differential Diagnosis, and Effective Treatment Recommendations
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3650992/
I was dx'd with Pulmonary Hypertension recently after having an echocardiogram for my more than usual heart palps. Since PH is a very serious disease and can be either primary or secondary to another condition, it's been a mad dash to see the specialists (cardiologist, rheumatologist and pulmonologist) to undergo more tests, scans, etc to get to the bottom of it.
First I was given an overnight oxygen test which showed night time hypoxia and I was put on an oxygen concentrator at night. The oxygen has eliminated most of my heart palps, has helped greatly with panic attacks, and has given me more stamina at the grocery store. It hasn't helped much with my overall CFS fatigue though. (I've had ME/CFS for 32 yrs).
I still don't have the final answer as to what's causing the PH or the hypoxia, if there will ever be an answer, but we've eliminated some of the potential causes such as PAH (the most serious form of PH), heart failure/disease, lung cancer and blood clots, and autoimmune connective tissue diseases. Sleep apnea is one possibility that I have not been tested for yet.
I'll see the pulmonologist this week to find out more. I will be mentioning that I made an interesting discovery after starting the oxygen at night. I had a hard time getting the fresh oxygen with the cannula because my nose gets very plugged up in the night. My rhinitis doesn't normally occur in the daytime, although I've had chronic post nasal drip for decades. I've seen umpteen ENT's to no avail.
I had not realized how much my night time nasal congestion had effected my breathing at night until now - only knew that my breathing was more shallow than normal.
I started taking Flonase and mucinex last week and have experienced a huge decrease in day time post-nasal drip and night time congestion. I can actually breath well at night now. I'm hoping this might ultimately solve my problem - but will have to wait and see.
Dr. Google turned up a number of studies linking rhinitis to hypoxia and pulmonary hypertension. Rhinitis can be either allergic, non-allergic, or a combination of both. Patients with ME/CFS frequently have one or the other or both.
I don't know if this will end up being the answer, but it's been interesting to note just the same.
Is pulmonary arterial pressure affected by allergic rhinitis with nasal obstruction?
https://www.ncbi.nlm.nih.gov/pubmed/18035798
Is Pulmonary Arterial Pressure Affected by Allergic Rhinitis with Nasal Obstruction?
https://www.researchgate.net/public...d_by_allergic_rhinitis_with_nasal_obstruction
Pulmonary hypertension evaluation by Doppler echocardiogram in children and adolescents with mouth breathing syndrome
https://www.sciencedirect.com/science/article/pii/S1808869416301070
Nonallergic Rhinitis, With a Focus on Vasomotor Rhinitis Clinical Importance, Differential Diagnosis, and Effective Treatment Recommendations
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3650992/
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