International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Prof James Coyne exposing Dutch Health Council misinforming Dutch Parliament

Discussion in 'General ME/CFS News' started by Lou Corsius, Nov 18, 2017.

  1. Lou Corsius

    Lou Corsius

    The Netherlands
    Following a citizens initiative the Dutch Parliament asked theDutch Health Council in 2015 to advise on ME. In March 2016 an advisory committee ME/CFS (ME/CFS was not the request!) was installed counting 10 members. 4 of them are explicitely MUS scientists. One of them is co-author of the editorial that hailed the PACE trial in the Lancet in 2011. In June 2016 the president informed members of Parliament about the process until then. In that meeting he made remarks about the IOM report. It was needed according to the president to add quality to the report considering new (Dutch) research was soon to be published. When asked to explain what the IOM is, he misinformed the MP's. Why did he do that? At least it is hard to believe that he is not correctly informed about the IOM himself, because according to the Council's website they are linked to each other. A specific research group in The Netherlands is very influential on the subject of ME and CFS. They are working closely together with the PACE-athors and with Esther Crawley on FITNET. It is this group that claim ME and CFS are based on false ilness beliefs and CBT/GET leads to improvement or even recovery. Very soon now, the Health Council will present their findings. To put it carefully, we have our doubts about that advice.
    When I met Prof Coyne some weeks ago during the screening of Unrest in Amsterdam, he asked who this person was discrediting the IOM/NAM. I informed him about this case.
    Last edited: Nov 18, 2017
    SilverbladeTE, pibee, Dolphin and 8 others like this.
  2. Kati

    Kati Patient in training

    Thank you Lou. This is concerning. Let us know what happens next.
    Mary and Skycloud like this.

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