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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Prescription Drugs Use in ME/CFS.

M

mtnbibliophile

Messages
41
I agree, and I don't trust most specialists either. My neuropharmacologist is the only one who checks carefully. I raised the question because my cardiologist, after seeing me the first time, prescribed simvastatin. I take nefazodone, as he knew, but apparently he didn't realize nefazodone considerably increases the impact of simvastatin - plus I'd forgotten to tell him that people with CFS/ME should be started with subclinical doses of any prescription medication. I usually check for interactions before I take anything, but was too tired that night. I won't make that mistake again (major insomnia, plus at least three nightmares during the limited time I was asleep).
 
peggy-sue

peggy-sue

Senior Member
Messages
2,623
Location
Scotland
I (personally) reckon that all statins should be contraindicated for PWME. I've never heard of nefazodone... but then, I'm in the uk and don't get any drugs to help with any ME symptoms. I don't get to see any specialists either.
The gp has now taken on the role of the gp's secretary. It used to be "her" job to prevent you seeing the gp - now it's the gp's job to prevent you seeing a specialist!
 
M

mtnbibliophile

Messages
41
oh, nefazodone is for depression, not CFS/ME. I've avoided statins for years, but my cardiovascular condition is now so bad that the benefits (e.g. continuing to live) outweigh the risks.
 
M

mtnbibliophile

Messages
41
Well, SOME pharmacists are very knowledgeable. Mine is not, possibly because he's old. Some pharmacists use drug-drug interaction software. Mine doesn't. No surprise: some of their records are still kept by pen on paper. Nevertheless, he is very convenient and very cooperative and that's more important to me, since there have been many times I've been unable to drive even the three minutes to his pharmacy.
 
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