Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Post-Infectious Ebola

Discussion in 'Other Health News and Research' started by mfairma, May 15, 2015.

  1. mfairma

    mfairma Senior Member

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    NPR posted an article today about post-infectious Ebola. It was a bit light on details of patients' symptoms, but I think some will find it interesting:

    http://www.npr.org/sections/goatsan...of-job-ebola-survivors-who-continue-to-suffer

    I posted a comment and in the process of doing so came across an interesting description of symptoms from a WHO psychosocial support officer seeing patients, posted in an article on the WHO website: Patients "complain of 'body aches' such as joint, muscle and chest paint . . . headaches and extreme fatigue, making it difficult to take up their former lives -- especially if it involved manual work -- as farmers, labourers and housewives." The quote is from an article posted last October, so I may be treading already posted ground. I may reach out to the author on facebook to ask whether he also has seen an emphasis on exercise problems in post-infectious patients.
     
  2. halcyon

    halcyon Senior Member

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    Clearly these post ebola patients need to get some exercise and CBT for their false illness beliefs.

    Kidding aside, I hope some real research is done on these patients. It would be very interesting to see what their cytokine levels look like compared to ME patients. There was also this recent article about a doctor that survived his infection and was supposedly cured, only to find that he had persistent ebola infection continuing in his eye.
     
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  3. Kati

    Kati Patient in training

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    moreover there should be a comparative study between post ebola patients and patients with ME. Cytokines would be a good measure.
     
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  4. mfairma

    mfairma Senior Member

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    It kills me how ready the medical community and society at large are to pull out the psychogenic explanation. I feel like it's a hydra, popping out of nothing with new heads everytime you lop one off.
     
    Last edited: May 15, 2015
  5. Denise

    Denise Senior Member

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    Thanks for posting this here on PR and for posting your comment on NPR. Here's hoping you get a response.
    I have read a few articles about post-infectious Ebola but do not remember seeing mention of incidence of post-infectious symptoms.
     
  6. Bob

    Bob

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    England (south coast)
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  7. Martial

    Martial Senior Member

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  8. Jammy88

    Jammy88 Senior Member

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    Post-Ebola? Just of matter of mental insanity.

    LOL.


    (Actually, that's very good news for us all… Let the researchers work hard and something will change in a near future)
     
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  9. Gemini

    Gemini Senior Member

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    @halcyon Thanks for posting the interesting New York Times article!

    There's a New England Journal of Medicine case report describing this doctor's eye infection & other post-viral symptoms (he's one of the co-authors):

    http://www.nejm.org/doi/full/10.1056/NEJMoa1500306#t=article

    Interestingly he had cognitive difficulties, low back pain, exercise intolerance, etc. "Ambulation was limited to short distances because of exertional fatigue."

    Agree with you-- would be interesting to follow his cytokine & other biochemical indicators as his symptoms changed and especially when they improved.

    Report calls for further studies of presence of virus in other 'immune-privileged sites" [other than the eye] e.g. in the central nervous system, gonads, and articular cartilage. This is a good recommendation.
     
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  10. halcyon

    halcyon Senior Member

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    That's highly interesting, thanks for the link.
     
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  11. Kati

    Kati Patient in training

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  12. leokitten

    leokitten Senior Member

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    What is very interesting is doctors have been finding most cases of post-ebola syndrome (other than still finding virus in immune-privileged areas like the eye and testes) to be some kind of autoimmune disorder:

    http://www.reuters.com/article/2015/02/04/us-health-ebola-survivors-idUSKBN0L81WA20150204
    https://publichealthwatch.wordpress...la-syndrome-plagues-survivors-in-west-africa/
     
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  13. Kati

    Kati Patient in training

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    Post-Ebola syndrome needs to be examined side by side with ME.
     
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