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Positive Action-Confusing Time

Discussion in 'Action Alerts and Advocacy' started by Nielk, Oct 5, 2011.

  1. Nielk

    Nielk

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    This is a difficult and confusing time for all of us.
    We feel hopeless and let down.
    There is something positive that we COULD do.

    We can vote for 3 contests running right now for people who are here for us.

    Let's show some appreciation for:

    Marly Silverman of PANDORA who was nominated for Jewish Hero 2011
    You can vote every 24 hours till Nov. 10th. She really needs us to vote for her!
    http://www.jewishcommunityheroes.org...rly-silverman/

    20th Anniversary of May 12th Awareness Day for ME/CFS, FM & MCS @ Aviva Community Fund
    http://www.avivacommunityfund.org/ideas/acf11724

    Vote for Fueling Good Reward link for ME/CFS Knowledge center
    http://www.fuelinggood.com/rewardinggood?id=834916


    Thank you so much for all your help!!!:victory::hug::victory:
     
    *GG* and Dolphin like this.
  2. Tony

    Tony Still working on it all..

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    Melbourne, Australia
    Thanks for starting this thread Nielk. Ggingues started another thread about Fueling Good and it was posted on Co-Cure as well. I'm voting in the latter two contests. The first one for Marly excludes me as I'm not in the US.

    Still it's an easy and simple thing most of us can do to make a difference where we can...:)

    Cheers!
     
    *GG* likes this.
  3. *GG*

    *GG* senior member

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    Concord, NH
    thanks for putting all this in one thread.

    GG
     
  4. Tuha

    Tuha Senior Member

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    many people are spending hours and hours with speculations about XMRV research. Now, there are maybe 20 threads about the last development of xmrv story. I would like to know how many from those people participate for example in these contests. I dont know, my opinion is to let this xmrv story and another research for scientists. i would like to see patients much more in advocacy section, trying to do something what they can improve.

    What i really miss here on PR (like the biggest ME/CFS forum in the world) - its a serious discussion about how to continue to do an effective advocacy. I cant simply not believe that after at least 30 years of ME/CFS we almost didnt move, that there are these psychiatric issues, CBT/GET theories, no money for serious research,.... We simply didnt do good our advocacy effort. This is more where I see patients role. and this is more about what we need to talk
     
    Lily and *GG* like this.
  5. *GG*

    *GG* senior member

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    Concord, NH
    Yes, people lets concentrate on what we can do and do what we can do to help our cause(s)!!

    GG

    PS I cannot keep up on all the other threads, and I think things are better than they were a few years ago. We have much more media attention and lots of research going on, and probably even more in the pipeline!
     

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