Anyone dealing with this? Had major stresses recently moving from mold home and then father had a stroke. Urine turned dark and reddish for days in AM.. water diluted. Kids have tested positive for pyroluria. my test was neg but sat at UPs for 5 days then at Vitamin Diagnostics for longer. Will never use them again for pyloruria testing. I assume a positive. I emotionally melted down. Thought I was going insane, remembered the pyroluria and upped my p5p.. body calmed down almost immediately. Posted on pyroluria list about the urine and was alerted to porphyria... my sister tested positive for this at Mayo when she was very sick. Then neg so she didnt think she had it. Porphyria could be a huge factor in lyme, cfs, and mcs. and I think mold illness.. i have a link to a board where someone refers to shoemaker testing for porphyrins.. but this was 8 years ago.. wonder why he stopped?? So... I am wondering if any of you have experience with this.. info.. I have "attacks" .. my illness started with an "attack" and I could not figure out how this fit in with lyme. I developed cfs a few years ago.. worse with lyme treatment. Worse after lyme treatment. Toxic mold exposure as well.. How the heck do these "conditions" keep adding up? I am getting from my readings that we produce porphyrins but when compromised, they can build up.. toxins can block the completion of heme production (or is it the breakdown?), infections play a role.. I am getting high carb diet (just when I was gearing up for paleo-GAPS), glucose for attacks, vitamin A mentioned by some but not in standard literature, water flushes for water soluable porphyrin (by products?) and CSM or charcoal for fat soulable.. avoid food and drug triggers. (the list is huge) Thank you for any insights..