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Poll: Who do you believe is the most effective CFS/ME doctor?

Discussion in 'ME/CFS Doctors' started by Jesse2233, Feb 14, 2017.

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Poll: Who do you believe is the most effective CFS/ME doctor?

  1. Dr Klimas

    2 vote(s)
    7.4%
  2. Dr Peterson

    2 vote(s)
    7.4%
  3. Dr Enlander

    1 vote(s)
    3.7%
  4. Dr Chia

    4 vote(s)
    14.8%
  5. Dr De Meirleir

    4 vote(s)
    14.8%
  6. Dr Bateman

    1 vote(s)
    3.7%
  7. Dr Montoya

    2 vote(s)
    7.4%
  8. Dr Kogelnik

    0 vote(s)
    0.0%
  9. Dr Kaufman

    3 vote(s)
    11.1%
  10. Dr Hyde

    1 vote(s)
    3.7%
  11. Dr Holtrof

    0 vote(s)
    0.0%
  12. Dr Myhill

    2 vote(s)
    7.4%
  13. Dr Teitelbaum

    0 vote(s)
    0.0%
  14. Dr Podell

    0 vote(s)
    0.0%
  15. Dr Lapp

    0 vote(s)
    0.0%
  16. Dr Levine

    2 vote(s)
    7.4%
  17. Dr Weir

    0 vote(s)
    0.0%
  18. Dr Beiger

    3 vote(s)
    11.1%
  1. Jesse2233

    Jesse2233 Senior Member

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    Let me know who I should add

    *Accidentally listed Bieger and Weir twice and can't edit. Vote for the first
     
    Last edited: Feb 14, 2017
  2. BurnA

    BurnA Senior Member

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    Not sure the background to this but unless people have seen more than one doctor can they really claim or believe one is better than the other ? Even if they have seen 3 or 4 doctors the poll will still be skewed in the direction of the doctors who have been seen by the most people here. ( Is that what you want to know ?)

    By all means have a poll but be wary of drawing any conclusions.
     
    Sancar, Ritto, Mary and 6 others like this.
  3. Countrygirl

    Countrygirl Senior Member

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    UK
    Dr Weir and Dr Bieger ????
     
    Gingergrrl and Jesse2233 like this.
  4. duncan

    duncan Senior Member

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    Do not forget Dr. Susan Levine. I think she also currently heads CFSAC.
     
    Jesse2233 likes this.
  5. Jesse2233

    Jesse2233 Senior Member

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    That's a fair point. I do think there are many members who have seen multiple doctors, and those who haven't may know people who have shared their experiences. But like any non-scientific survey, I agree it should be taken anecdotally rather than empirically
     
  6. Sushi

    Sushi Moderation Resource Albuquerque

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    Albuquerque
    I edited it for you.
     
    Jesse2233 likes this.
  7. Mary

    Mary Moderator

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    Southern California
    I've seen or consulted with 3 of them - Kaufman, Chia and Myhill, and none were able to help me. To be fair, I believe Myhill's nutrient regimen is very good, but I was already doing most of it before I had testing done by her and it has not solved the central problem of PEM. I do recommend her testing if you can get it done as it showed severe deficiencies in ATP metabolism, which was something. And Kaufman's testing was good as well, but still no help, same with Chia.
     
    TreePerson, justy, Helen and 2 others like this.
  8. Theodore

    Theodore Senior Member

    Messages:
    687
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    684
    France
    Do you mean that Oxymatrine didn't help you?
     
  9. Jesse2233

    Jesse2233 Senior Member

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    Southern California
    Thank you!
     
  10. Mary

    Mary Moderator

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    Yes, it didn't help. I took Equilibrant and it had no effect on me, good or bad.
     
    TreePerson and Sancar like this.
  11. TigerLilea

    TigerLilea Senior Member

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    Vancouver, British Columbia
    There is no BEST doctor for ME/CFS until medical science can figure out what exactly this illness is. All of these doctors are just guessing at treatments and making a lot of money doing so. No one seems to be cured yet or back to living a "normal" life.
     
    anuj, nw25604, wastwater and 5 others like this.
  12. IreneF

    IreneF Senior Member

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    San Francisco
    Dr. Montoya is not in private practice; he's an employee of Stanford and does not make a lot of money off of patients. There are other docs that do seem to be in it for the money. I think there are some threads about the uselessness and expense of Holtorf.
     
  13. TrixieStix

    TrixieStix Senior Member

    Messages:
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    896
    Dr. Chheda at OMI
     
  14. TrixieStix

    TrixieStix Senior Member

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    896
    I would be interested in seeing a poll that simply asks which ME/CFS specialist/s you have seen.
     
    nw25604, Sancar and justy like this.
  15. Theodore

    Theodore Senior Member

    Messages:
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    684
    France
    I have read on PR about someone who hadn't had any response to Equilibrant until he took Resistant Starch for some months.
     
  16. Binkie4

    Binkie4 Senior Member

    Messages:
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    2,730
    Re: the poll.

    Does anyone know if Dr Enlander is still practising? No votes on the poll but perhaps he's retired? I think I remember reading that a grateful patient had left him £100000 to set up a ME/cfs unit and he was training up other doctors. Would be wonderful if something similar were to happen to Dr Davis.

    I ask because, although in UK, I will be in New York in the autumn. Is it worth trying to set up an appointment? I try to balance my life using what energy / money I have to do what I want to do/ what might benefit my several health conditions ( one perhaps just as difficult as ME, needing controversial treatment in Germany). Cannot bear to spend all my energy searching for treatments but since will be in NYC anyway, it might be worth trying Dr Enlander.

    Would be grateful for Any experiences/knowledge.
     
  17. Jesse2233

    Jesse2233 Senior Member

    Messages:
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    Southern California

    Yes he's still practicing, had a call with him last week
     
    Binkie4 likes this.
  18. Binkie4

    Binkie4 Senior Member

    Messages:
    605
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    @Jesse2233

    Thank you. Do you recommend him? Has he helped you? If you are communicating via calls, perhaps you had to travel to see him? Does that work ok?


    Oh dear too many questions. Hope you might be up to feeding back a bit. Feels like gold dust. Thank you.
     
  19. Mary

    Mary Moderator

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    Southern California
    FWIW, I've been taking resistant starch for many months now and don't feel any different in general, though it may have helped my gut a little. No, I haven't been taking equilibrant at the same time, it might be worth an experiment but I just don't think it will do anything for me. I had ZERO reaction before. I have been taking andrographis for a few weeks and it IS doing something, I think is helping my immune system, though the jury is still out on this one :sluggish:
     
    Theodore likes this.
  20. Jesse2233

    Jesse2233 Senior Member

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    Southern California
    No problem Binkie4

    I only had one call with him and haven't tried any of his treatments yet. He offered me his standard protocol of Hepapressin and supplements and coordinated with my primary doctor. I may not end up doing Hepapressin because I can't find peer reviewed studies on its effectiveness. I've seen some reports of patients who helped by him and some who he didn't help.

    Over the phone he asked a lot of questions, and was patient with my large list of questions as well. And his office was very easy to work with
     
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