• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

POLL: How common are sun allergies/sensitivities (to light, not heat)?

When exposed to sun (light, not heat) I get:

  • polymorphic light eruption (see link*** if not sure if your rash is PMLE)

    Votes: 5 17.9%
  • another type of abnormal skin reaction

    Votes: 0 0.0%
  • malaise/PEM

    Votes: 5 17.9%
  • polymorphic light eruption AND malaise/PEM

    Votes: 1 3.6%
  • another type of abnormal skin reaction AND malaise/PEM

    Votes: 1 3.6%
  • no reaction

    Votes: 10 35.7%
  • a completely different reaction

    Votes: 6 21.4%

  • Total voters
    28

Strawberry

Senior Member
Messages
2,109
Location
Seattle, WA USA
Another diagnosed PMLE sufferer... I have been trying to go tanning once a month this winter to keep my skin hardened against rash.

@Ravn and anyone else that needs treatment, I have a thread here somewhere... My favorite is shirudo lotion.
 

ahmo

Senior Member
Messages
4,805
Location
Northcoast NSW, Australia
When I first collapsed w/ ME, I had terrible sun sensitivity, could not tolerate it on my skin at all. 8 years later, when I added supps for pyroluria, (one of the symptoms is sun sensitivity) it disappeared. Within 5 days I could tolerate the sun. I find now that sitting in the sun is very depleting, but I no longer react to it as I had. good luck.