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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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'Suspected neurological conditions'
Funny old world…
The MEA has just been invited by NICE to register as a stakeholder in the guideline development process for 'suspected neurological conditions'
Having been asked I must assume that NICE regard ME/CFS as a 'supected neurological condition' !
CS
and yet when you click on ME you get
The requested path could not be found
???
I tried it too @slysaint and I had the same message.
Perhaps the MEA could raise the issue with them?
Good luckA new learning curve is about to begin!
I think someone tried to make the page URL have "chronic-fatigue-syndrome/myalgic-encephalomyelitis" in it, which doesn't work due to the "/" being a special character representing a subfolder.and yet when you click on ME you get
The requested path could not be found
???
This process started in 2015; seems rather late in the day to ask you to register?Yes, I am going to investigate further next week - as well as registering for stakeholder status in 'suspected neurological conditions'
A new learning curve is about to begin!
CS
Sorry - only just realised you got there before me!I think someone tried to make the page URL have "chronic-fatigue-syndrome/myalgic-encephalomyelitis" in it, which doesn't work due to the "/" being a special character representing a subfolder.
It's probably trying to go to http://pathways.nice.org.uk/pathways/chronic-fatigue-syndrome-myalgic-encephalomyelitis