Plase help me to understand

[notmyself]

I have a few issues by now complications of the CFS, I developed POTs too and I have colitis, But my relapses were all triggered by exercise, I remember exactly each one, I have been on kind of remissions like 3 times.
First time I did pull ups on a bar. Second, I did a video Gillian (the lady from the biggest looser), the third I tried to run.
I do not handle aerobic, every time I go heavy aerobic I relapse, now I have other things like stomach bug, the fall, and other things that will crash me, specially every fall, no matter what I do, I relapse.

I take a lot of energy things by now and I respond well to the classic ones: COQ10, D-ribose, ALC w ALA. I added a few PEM boosters lately but I am on a bad patch right now, I was doing great before this crash, I think I was exercising too much again. I can handle about 30min of recumbent bike but I have been pushing 1h + some my own body weight strengthening exercises (cant let things hang!).

I have a hate love relationship w exercise you would ask why! well if I don't exercise I plateau the only way I get better is by exercising (be aware my POTs is worst than my CFS). but exercise is good for POTs but bad for CFS, let it to me to get 2 mutually exclusive diseases!

My doctor has my CFS mostly controlled. I am on antivirals + immune mods.[/QUOTE

What is the best suplement you recomend??i order D-ribose,L-carnitine and L glutamine..I am definately not an expert ,but i've done a lot of research latelly and i wonder ..is not possible that you have jsut POTS? wich defiantely can cause the fatigue aswell??

 

[Seven7]

No I am sure I have CFS because I went to one of the best CFS specialist and I am classic: Brain lessions, Low NK activity and Number, low Ts, high Bs, inmune pannel and cytokine all the tell tell signs that the expert use as CFS I have them all, the classic viral reactivations..... I got my AT measured.... Trust me classic ME/CFS case.

But sine I had treated the immune side so well, my issue is POTs but CFS as long as I keep the NK at decent levels and Titters low and I am on immune mods meds is ok.

DO NOT start all the supplements at the same time, one at the time then add the next after 2 weeks if you are the same level or better. I take all those you listed + bCAA something like that too tired to go read. I would buy the L-cartinine w ALA (to protect brain).