PETITION for AN APOLOGY RE: ME/CFS (to Assistant Sec.of Health)

[Dreambirdie]

Please sign the petition to the Assistant Sec. of Health
Apologize for not Responding Appropriately to the ME/CFS Epidemic
and pass it on.


https://www.change.org/petitions/apologize-for-not-responding-appropriately-to-the-mecfs-epidemic

 

[Dreambirdie]

HEY, WHERE IS EVERYBODY! Please take a moment to sign this petition.

THere are 208 signatures already. The goal is 500. Please sign.

 

[Gamboa]

Done.

Come on everyone else: please sign .

 

[Dreambirdie]

224 signatures as of 11 am. MORE NEEDED!

 

[Sasha]

Hi Dreambirdie - are non-US people allowed to sign?

 

[Nielk]

I signed it yesterday.

 

[Dreambirdie]

Hi Dreambirdie - are non-US people allowed to sign?

I am not sure. But I would do it anyway.

 

[Dreambirdie]

I signed it yesterday.

Great! Thanks.

 

[Dreambirdie]

HALF WAY there at this point--250 signed already ay 4:27 pm today.

 

[Guido den Broeder]

Don't make this a petition.

It's a demand!

 

[Nielk]

As much as we would like to, we can't hold a gun to his head (although i can't say I don't like that image)

 

[Sasha]

I am not sure. But I would do it anyway.

Thanks - done!

 

[Dreambirdie]

266 people have signed so far.

Please sign and pass it along... the more the better!

 

[leela]

done. 288 now.

 

[Sushi]

Done!

Sushi

 

[Dreambirdie]

308 and counting...

THANKS Leela and Sushi, and everybody else who has signed the petition. Here is the link again.
http://www.change.org/petitions/apologize-for-not-responding-appropriately-to-the-mecfs-epidemic

 

[Dreambirdie]

332 signatures as of this morning.

Keep 'em coming! We're doing well.

 

[mezombie]

This is the message that will be sent to Secretary Sebelius and six other health officials when you sign:

Greetings,

I just signed the following petition addressed to: Kathleen Sebelius, Kathleen.Sebelius@hhs.gov.

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Apologize for not responding appropriately to the ME/CFS epidemic.

Bjrn Guldvog, Deputy Director General of the Norwegian Directorate of Health, recently made the following statement in response to a published study indicating the cancer drug Rituximab is an effective treatment for ME/CFS:

"I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that."

Follow the Norwegian Health Minister's example.

In addition, we ask that you:

1. Double the current NIH funding for extramural research. Priority should be given to research on biomarkers and potential pathogens as well as clinical trials.

2. Take down information on the CDC's CFS website stating testing for pathogens and biomarkers is "experimental and theoretical" and that GET and CBT are appropriate treatments.

----------------

Sincerely,

 

[Dreambirdie]

364 signatures as of this morning.

Less than 150 to go.

 

[Dreambirdie]

I want to add that the patient comments are *awesome.* Please check them out.
It breaks my heart to read about how many lives this illness has destroyed.