Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Peter White (PACE) in the Guardian

Discussion in 'General ME/CFS News' started by Old Bones, Sep 30, 2016.

  1. Old Bones

    Old Bones Senior Member

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    If my team’s research on ME is rejected, the patients will suffer
    Peter White

    Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and exercise therapies can make a real difference

    He just doesn't give up! This article, posted in The Guardian today:

    https://www.theguardian.com/comment...tients-suffer-put-off-treatments-our-research

    A few gems:

    "For many years Nice (the National Institute for Health and Care Excellence, which oversees healthcare evidence) recommended just two treatments – graded exercise therapy (GET) and cognitive behavioural therapy (CBT) – because it had the best evidence that these therapies worked "

    "The idea of doing exercise therapy was scary for some patients, worried that over-exertion would exacerbate their ill-health."

    "The results of our study, published in The Lancet in 2011, were clear – those patients given CBT or GET experienced significantly greater improvements in both symptoms and ability to do things, compared with either pacing therapy or specialist medical care alone. Not only were CBT and GET more effective: crucially, they were just as safe as the other treatments when done correctly."

    "Whichever way the data is viewed, patients get better results from CBT and GET – both confirmed as safe . . . "

    "This whole affair is perhaps saddest for the patients themselves, . . . However, if their campaign puts people off trying CBT and GET, it will be the patients themselves who will suffer the most."
     
    Last edited: Sep 30, 2016
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  2. Effi

    Effi Senior Member

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    Sorry @Old Bones, I can't like your post. When will they stop spouting their nonsensical false illness beliefs??? :(:cry::aghhh::vomit:
     
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  3. Chrisb

    Chrisb Senior Member

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    That sounds like a threat.

    They seem wholly unable to get the tone right.
     
  4. Old Bones

    Old Bones Senior Member

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    The website applies a September 30, 2016 date to the article. Whether or not it was written in 2011, "regurgitating" the article can still do some damage in the minds of the ill-informed.
     
  5. TiredSam

    TiredSam The wise nematode hibernates

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    Fiddling while Rome is burning. Very nice of him to give us a platform to politely shred that nonsense in the comments section. Fairly sure it will end up being a PR disaster for him. I'm standing by to click up the good comments.
     
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  6. hellytheelephant

    hellytheelephant Senior Member

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    My first reaction on seeing the article: ' Oh crap! I will be seeing a load of Guardian readers tomorrow- I wonder how many will be referring to this 'good news'.for me.....:bang-head:
     
  7. Esther12

    Esther12 Senior Member

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    Wow!

    Tweaks!

    Wow!
     
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  8. user9876

    user9876 Senior Member

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    Somewhat shocking he is accusing people of tweaking results when they used his protocol.
     
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  9. snowathlete

    snowathlete

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    This is the most appalling coverage I have ever seen, even worse than what has come before.
     
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  10. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    I have put a comment in but it has immediately disappeared.
     
  11. snowathlete

    snowathlete

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    This is a pure lie. No statistical significance means patients don't get better results from the treatments.
     
  12. TiredSam

    TiredSam The wise nematode hibernates

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    It's there, I was the first person to recommend it :thumbsup:
     
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  13. Cheshire

    Cheshire Senior Member

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    - by creating a fake campaign claiming patients are terrorist to shut down their voices
    - by changing recovery outcomes that make you healthy when you have the capacity of someone suffering from heart diseases
    - by dismissig any biomedical research that proves there's something physically wrong with us, and trying to cure us of our faulse illness beliefs
    - by engaging us in harmful treatments
    - by discouraging meicla care for us, poor delusional souls

    Thanks very much Peter.
    Indeed
     
  14. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    Good, something odd happened initially.
     
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  15. Sidereal

    Sidereal Senior Member

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    Shocking lies.
     
  16. Esther12

    Esther12 Senior Member

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    LOL. Especially with the CMRC's MEGA petition... "Reject me and all hope for research we be ENDED!"
     
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  17. aimossy

    aimossy Senior Member

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    Can we get a gag order on Peter white through cmrc? He is being unprofessional. He gets criticism of his work and not even in mainstream news and yet he goes to the newspapers and gets a headline for himself how is this ethical?
     
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  18. aimossy

    aimossy Senior Member

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    Surely this will allow a response to be done in mainstream media at least?
     
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  19. Cheshire

    Cheshire Senior Member

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    Well, the title acknowledges the possibility of the study being rejected.
    At least some sort of lucidity!
     
    Last edited: Sep 30, 2016
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  20. TiredSam

    TiredSam The wise nematode hibernates

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    Anyone know what "more research" he's referring to there?

    There are lies, there are damned lies, there are statistics, and there's Peter White.
     
    Last edited: Sep 30, 2016

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