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I'm new here. I'm still in the process of getting a diagnosis, but my condition is deteriorating rapidly in the meantime and I don't know what to do.
I've been having flare-ups of muscle pain, extreme sensitivity to sensation, stiffness, and weakness - mostly in my legs - that are causing difficulty walking. When the first one happened, my doctor sent me for an urgent rheumatology appointment, but the exam and subsequent blood tests didn't show anything unusual. The doctors said it was probably ME/CFS and/or fibromyalgia and sent me home with an EMG order for several weeks out. In a few days I regained function, though I was much weaker. I've been careful not to overexert myself since then, but just getting to work every day seems to be beyond my limits. I'm in the middle of another pain flare. I'm stuck on my second floor apartment and I'm using a cane to get around.
Is this typical for ME or fibro? Most of my other symptoms (extreme fatigue, PEM, orthostatic intolerance, heat intolerance, persistent aches and pains) are typical ME symptoms. I've had episodes of muscle pain and stiffness with PEM and weather changes before, but never this severe. I think it's the pain itself that's causing difficulty walking, but I'm not sure.
I've been having flare-ups of muscle pain, extreme sensitivity to sensation, stiffness, and weakness - mostly in my legs - that are causing difficulty walking. When the first one happened, my doctor sent me for an urgent rheumatology appointment, but the exam and subsequent blood tests didn't show anything unusual. The doctors said it was probably ME/CFS and/or fibromyalgia and sent me home with an EMG order for several weeks out. In a few days I regained function, though I was much weaker. I've been careful not to overexert myself since then, but just getting to work every day seems to be beyond my limits. I'm in the middle of another pain flare. I'm stuck on my second floor apartment and I'm using a cane to get around.
Is this typical for ME or fibro? Most of my other symptoms (extreme fatigue, PEM, orthostatic intolerance, heat intolerance, persistent aches and pains) are typical ME symptoms. I've had episodes of muscle pain and stiffness with PEM and weather changes before, but never this severe. I think it's the pain itself that's causing difficulty walking, but I'm not sure.