Pacing with hr monitor and OI

[soti]

I've been pacing with a hr monitor (Fitbit HR Charge) for a month and change, and my resting hr has been going down. Which is good and I feel more rested but the lower it is, the more I feel woozy and headachy and orthostatically intolerant. I do normally but this is unusual. Anyone experienced this?

I wish there were a resting heart rate that was goldilocks-right in between but I seem to go from digging myself a hole (higher hr) straight to woozy mc wooz face (lower hr)

 

[Sushi]

my resting hr has been going down. Which is good and I feel more rested but the lower it is, the more I feel woozy and headachy and orthostatically intolerant.

How low is your HR going?

 

[soti]

"low" in this context is around 73 bpm (this is fitbit's proprietary calculation of resting hr, something like a daily average over times they deem you to be resting)

 

[Sushi]

"low" in this context is around 73 bpm

That is a pretty normal HR. In my experience, not low enough to create symptoms. Could it be anything else?

 

[soti]

Yeah, that's the thing. hr pretty normal (did fail a poor man's tilt table test, i.e. +40bpm between lying and 10 mins standing). bp pretty normal. blood volume? but why only when hr has come down? could a higher hr mask a blood volume problem?

I don't expect there's anything to do about it other than the usual OI stuff but curious if anyone else gets this and how they deal with it if so.

 

[arewenearlythereyet]

My resting heart rate fluctuates between 55 and 64 (I have a Fitbit blaze) There doesn't seem to be much rhyme or reason as to why it's lower some days than other days. I don't get any symptoms like you describe when it's on the low side. It seems to be lower when I've been more active but can change from day to day. I just ignore it as probably being a factor of how Fitbit average things.

 

[CFS_for_19_years]

Have you checked your blood pressure lately?

 

[soti]

bp 110-120 over 70-80.