When the 'Holiday Season' Is No Holiday at all for Those With ME/CFS
Is December getting to you? Jody Smith shares some thoughts on some of the struggles that all too often attend this time of year ...
Discuss the article on the Forums.

PACE Trial text of joint letter calling for more information, 24 May 2011

Discussion in 'General ME/CFS News' started by Dolphin, May 24, 2011.

  1. Dolphin

    Dolphin Senior Member

    Messages:
    10,737
    Likes:
    28,348
    PACE Trial text of joint letter calling for more information, 24 May 2011

    http://www.meassociation.org.uk/?p=6171

     
  2. Sasha

    Sasha Fine, thank you

    Messages:
    12,812
    Likes:
    34,305
    UK
    Excellent, really excellent. It amazes me that in these days of pre-registered, public domain trial protocols, journal referees aren't routinely cross-checking the submitted results against the planned analyses in the protocol.

    That in itself should be newsworthy. I consider it fraud to withhold data on planned primary analyses and present secondary analyses as primary.
     
  3. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    862
    UK
    Marvellous letter - thanks for posting Dolphin.
     
  4. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,641
    Likes:
    12,526
    South Australia
    I would have asked the possibility of a followup study using actometers to compare activity levels to baseline. We have never had long term objective measures of activity levels after CBT/GET and this would be valuable data...
     
  5. Daisymay

    Daisymay Senior Member

    Messages:
    744
    Likes:
    4,050
    Very good letter, well done MEA etc but wish MEA had been doing this sort of thing years ago then we would have been in a much better position now!
     
  6. Dolphin

    Dolphin Senior Member

    Messages:
    10,737
    Likes:
    28,348
    Christine Llewelleyn RIP (sp?) did try to set up a petition against the PACE Trial around 2004. However, I think she didn't have enough numbers to make it useful.
     

See more popular forum discussions.

Share This Page