Cinders66
Senior Member
- Messages
- 494
I agree with what used to Be MEA position that PACE money should have gone in biomedical research and would have been much more bang for the buck etc. I disagree with today's conclusion that what we desperately need are activity management trials on a heterogeneous CFS cohort. Activity management is something patients can do or have to do right now, in the absence of any thing like proper treatment. I guess the purpose would be to show preference over GET but Biomedical research could equally demolish the GET argument (you're less likely to prescribe exercise for people who's cells are shown to not metabolise glucose and the BPS model was based on the assumed absence of organic explanations ) as well as actually get treatments and we already know that pacing /activity management is mainly of most value to the newly ill, not the 100,000 or more who've been ill years and are entrenched or severe.