OUR FAVORITE DRUG (HOPE), AND TIME TO SAY “AUF WIEDERSEHEN”, October 8, 2012, by XMRV Global Action

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OUR FAVORITE DRUG (HOPE), AND TIME TO SAY “AUF WIEDERSEHEN”, October 8, 2012, by XMRV Global Action

"Suffice it to say that the XGA team has reached a turning point, and we wanted to exit with a positive statement about hope. This is not a capitulation, rather an opportune time for us individually to focus on our health and our respective advocacy initiatives. October 8th seemed like an apropos day to close shop, and to pass the torch on to other forums. We hope that the tone and content of this letter conveys our feeling of continuing and irrepressible optimism about research and treatment prospects for neuro-immune diseases and for M.E. Even with XMRV’s demise, we have moved substantially forward. And each of us is continuing to work in the background on our own personal
advocacy initiatives."

https://docs.google.com/open?id=0B5WMbsUn0T0TZDJGU2x0NTlnZHM

 

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We really agonized over the bittersweet decision to close the doors on XGA, and still feel ambivalent... it’s been a tough call, particularly as this has been a home for us on the internet that has resonated with our values. And along the way, although we’ve never met each other, the XGA admin, and many of our group members have become fast friends. Which is why we think of this as a “See you again”, rather than a “Good bye”.

We’ll keep these pages open for another week, and encourage you, our members, to offer your favorite forums and websites for M.E. and neuro-immune disease information. And in the final pages of this document, we too have provided some of our favorite online resources.

As we said at the outset, this is an Auf Wiedersehen, not a good-bye. Thank you for joining us on this journey, and we look forward to the next chapter of hope.