International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
Discuss the article on the Forums.

"One year on: what I would like my friends to know" (October 9)

Discussion in 'General ME/CFS Discussion' started by Tom Kindlon, Dec 3, 2016.

  1. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,464
    Likes:
    8,448
    October 9, 2016 Rosa

    She has ME. Also lupus, but this focuses on her ME.

    https://goo.gl/pGFdQI
    i.e.
    https://rosarainbows.wordpress.com/2016/10/09/one-year-on-what-i-would-like-my-friends-to-know/
    ---

     
    Last edited: Dec 3, 2016
  2. SuzieSam

    SuzieSam Senior Member

    Messages:
    201
    Likes:
    521
    Israel
    This:

    "I have seen how even when we still have so many limits and still are sick, those with M.E actually try twice as hard as the average person to keep living their life, and try so many things in the hope of getting better, but are often only able to achieve a fraction of what others can. Its like living with the functionality of an 85 year old (and for those with severe M.E, that is actually the observed functionality)."

    Really hit home for me. It's such a relief to read things written by fellow ME sufferers. I push myself too hard to care for my teenage kids and husband. I've made myself more ill. Knowing that we're a whole spread out community of people with similar stories is helping me see that I HAVE to stop this. I've tried so hard - it's not a personal failure. I'm very ill. I must rest. They can cope. I'm the one who is suffering, and will continue to do so long after the kids have left home.

    It's so hard to admit, but yes, I'm seriously ill. And my husband just has to cope with the harshness of that fact. And stop laying on the guilt.
     
  3. valentinelynx

    valentinelynx Senior Member

    Messages:
    666
    Likes:
    1,478
    Tucson
    My dad is 83, and he way more "functional" than I am! I'd say I'm more in line with my father-in-law, the 98 year old with congestive heart failure...
     
    SuzieSam likes this.
  4. SuzieSam

    SuzieSam Senior Member

    Messages:
    201
    Likes:
    521
    Israel
    It is SO maddening. In the 9 years I've been ill I've seen several people I know go through cancer, surgeries and chemo, and thankfully return to full lives. I'm so jealous. I'm still here, now 41, desperate to be well, worse than ever.

    As one of the ME doctors says, I think Nancy Climas - I'd rather be HIV positive. And I'd rather be paralysed from the waist down, but otherwise healthy and energetic. Able to be out in the world again, with people, talking, laughing, living!

    I'd swap this for that in a heartbeat.
     
    MEMum likes this.

See more popular forum discussions.

Share This Page