"One of the best treatments—exercise—is diligently avoided by many people with CFS."

[alex3619]

makes me want to get out my tin-foil hat.

We might need a factory making tin foil hats in bulk.

 

[Valentijn]

The ignorant, patronising, cheeky, fu*king, basta*ds!!!! i'm not even going to click on that link or i may spontaneously human combust

I'm pretty sure that's one of our psychosomatic super powers.

 

[Snow Leopard]

But research suggests that exercise helps improve fatigue, functional status and fitness.

Based on what evidence? Oh, healthy people? Right, so no specific evidence then...

Ditto. I'd give anything to go for a sprint.

I still have plans to do the 900km off-road Mawson Trail cycling experience! https://en.wikipedia.org/wiki/Mawson_Trail

One of my friends (who used to go hiking/camping a lot before becoming ill) said he wanted to do it too!

Dear researchers, hurry up and find treatments already!

 

[Dufresne]

It would be nice if someone with some clout over there in the US could communicate with these morons and let them know how outdated and potentially damaging their simple-minded advice is.
http://www.acefitness.org/fitness-fact-article/2606/work-out-chronic-fatigue/
"research suggests that exercise helps improve fatigue, functional status and fitness."
"People with CFS feel limited to enjoy the benefits of an active life. It won’t be easy to get started, but once you do you may be surprised how daily exercise can help you to reclaim your life."

I was actually an ACE-certified trainer in my previous life. Just another one of life's cute little ironies. Seriously, what idiots. They probably got their information from the same place that says "Flea" of The Red Hot Chilli Peppers had CFS. I mean I'd love to be whacked up on drugs, bouncing around on stage playing bass completely naked except for a sock on my junk...

 

[Aurator]

As of about an hour ago, it seems the comments (I think there were 7) have all been deleted.
Maybe more official representations are now called for.

 

[Effi]

@Aurator I can still see them here: http://www.acefitness.org/fitness-fact-article/2606/work-out-chronic-fatigue/

 

[barbc56]

Why don't they get it? Fatigue, even on a chronic bases can be caused by many things such as lack of sleep, burnout, etc. That's not what we have and our fatigue which is only one symptom, is the result of this illness. But then the name CFS doesn't help.



Barb

 

[Hell...Hath...No...Fury..]

Because they're thick.

I used to be a personal trainer too (not from acehole - sorry Dufresne). Makes me feel like crawling under a rock.

 

[Aurator]

@Aurator I can still see them here: http://www.acefitness.org/fitness-fact-article/2606/work-out-chronic-fatigue/

Many thanks, Effi. I too can see them now, but I couldn't about half an hour ago, and I went away and returned several times.
Anyway, it will be surprising if there isn't a reaction of some kind from them at some point.

 

[Effi]

@Aurator Maybe they're reading the IOM report as we speak, to find out what the hell all these commenters are talking about. It's a pretty lengthy document!

 

[barbc56]

Oh! Oh! Oh! I'd be jumping up and down if I had the energy.

When I looked at the site, there are local listings of Ace Fitness in the sidebar. Guess who is going to be getting a call/personal visit/email/letter in the near future? If I have the energy and don't feel like a vampire has sucked out my bone marrow, that is.

This is the most excited Ive been in a long time. Of course it goes without saying, it would be more exciting if things like this didn't occur. I will have to plan this very carefully, as the devils in the details and presentation is everything.

But they better look out!

Ever hear the phrase teachable moment, Ace? Teachable moments, is my middle name! Even if I have to cram it down your face. Okay, forget the last part as it sounds too exhausting and could backfire.

Don't even think of warning them. This will just stay between us, okay?

I'll be watching, just in case.

Barb

 

[alex3619]

Because they're thick.

In medical jargon the term is "inept". That is lacking specific knowledge that would lead to better advice.

 

[leela]

I can't see the comments in any browser. It just says "Comments" and nothing, with nothing to click.

ETA: can see comments on the ipad. Great job guys!

 

[Hell...Hath...No...Fury..]

In medical jargon the term is "inept". That is lacking specific knowledge that would lead to better advice.

I prefer thick though

 

[anciendaze]

I prefer thick though

We need more ept doctors.

 

[barbc56]

We need more ept doctors.

 

[Hell...Hath...No...Fury..]

We need more ept doctors.

Lol!

 

[Amaya2014]

I called the number listed on the website and was directed to their PR dept. I'm still waiting to hear back. I was wondering why noone was listed as the author, in addition, to why ACE was printing such ignorance.

Then someone posted that the article was a reprint from 2011 in the Woodbury Gazette. That article was written by a Lori Offenhauser, phone 201-681-4822. She did call me back but claimed she doesn't write and had no recollection of the article. I sent it to her but she hasn't responded yet.

 

[heapsreal]

Maybe someone should link phoenix rising in the comments .

 

[Snow Leopard]

Maybe someone should link phoenix rising in the comments .

I disagree. I also think less is more when it comes to the comments. The comments there are already good and more comments will weaken, rather than strengthen the argument.