Learner1
Senior Member
- Messages
- 6,305
- Location
- Pacific Northwest
Dr Kaufman gave me his new one. You should probably call and ask.
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Dr Kaufman gave me his new one. You should probably call and ask.
Hey guys! About to head out to my appointment but wanted to post the email I got from the office:
I was just going to post something about this. They didn't contact patients who don't have current appts, although it sounds like Dr. Kaufman is planning on it, according to @Gingergrrl . I only found out because I called to make an appt and then they didn't offer any info -- I had to ask: Is there a new fax? Is there a new address? Did Dr. Kaufman get my email? Does the portal still work? Anyway, Ellen sent me a records release, new registration form and pharmacy info form, if anyone needs them, I can send/post on here. I also have Dr. Kaufman's new email. She said all emails are going through him for now and there is no clinic email.Received this email today:
They didn't contact patients who don't have current appts, although it sounds like Dr. Kaufman is planning on it, according to @Gingergrrl .
I was just going to post something about this. They didn't contact patients who don't have current appts, although it sounds like Dr. Kaufman is planning on it, according to @Gingergrrl . I only found out because I called to make an appt and then they didn't offer any info -- I had to ask: Is there a new fax? Is there a new address? Did Dr. Kaufman get my email? Does the portal still work? Anyway, Ellen sent me a records release, new registration form and pharmacy info form, if anyone needs them, I can send/post on here. I also have Dr. Kaufman's new email. She said all emails are going through him for now and there is no clinic email.
But why did they split? Are they doing anything differently? From a new patient perspective...why should someone go w/them?
Hi. New here. Has anyone had difficulty getting their phone calls answered? I called 3x on Friday trying to get a new patient appointment with Dr. K. Phone rang a long time then a generic cell phone voice mail answered, didn't sound at all like a business voice mail system. Just hoping I can get through sometime next week and it is just a fluke with the recent move.
That was my understanding.I suspect that the original OMI will be more focused on research studies and the new clinic will be more focused on direct patient care.
Did it seem like they were sticking with the same style of seeing patients themselves? I guess I am a little concerned they are going to convert to a model in which they don't interact directly with patients at every appointment as they did at Open Medicine Clinic. We hear stories from patients of other ME/CFS specialists in which they complain they never even see their doctor during appts and are instead seen by medical assistants.I had an appointment last week at the new clinic. It shares a lobby with a lab. I especially liked the long bench I could collapse on while I waited.
Ellen and Lorie are there, and I've exchanged messages with both of them and Dr K regarding my treatment. Elation was easy to set up once I filled out the forms.
They were still getting normal move things done while carrying on with helping us and I'd expect things will smooth out shortly.
That was my understanding.