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#OMFScienceWednesdays-Olav Mella talks autoimmunity and metabolism in ME/CFS

Discussion in 'General ME/CFS News' started by Ben H, Feb 14, 2018.

  1. Gingergrrl

    Gingergrrl Senior Member

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    It sounds like a difference to me too, but then again, what do I know? :D

    I never really resonated with the whole Dauer state hypothesis but maybe b/c it is just not how my own illness presents. I do not lack energy but I am limited in what I can do standing/walking to the point that I still use wheelchair when I go out. I go out daily, but with the wheelchair, I really have no limits now. And once I reach my destination, I often do not need the wheelchair which is a vast difference to pre-treatment when I needed it 24/7 inside of my apt. I also have a vast improvement in muscle strength and breathing (but it never felt like a lack of energy to me).

    My own illness is autoimmune/immunological for sure and it started off viral and flipped into autoimmunity. I was very high IgM+ for EBV for 3-4 yrs post-Mono which I had in 2012. What antibody was he referring to? Antibody tests are no longer considered accurate for me after 1.5 yrs of IVIG (vs. PCR tests are still accurate).
     
  2. Gingergrrl

    Gingergrrl Senior Member

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    I would love to have this panel done some day but at the moment I cannot do any blood work until my insurance is re-instated (unless it was an emergency of course).
     
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  3. Wonkmonk

    Wonkmonk Senior Member

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    He didn't specify. He just said "maybe an antibody", if I remember correctly.
     
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