Volunteer opportunity: Organizing Phoenix Rising articles
This section contains all the articles that have been published by Phoenix Rising over the years. As you will see if you browse here, some of the articles are outdated--either the research has been superseded or retracted or the article features an event or campaign that is now in...
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Discussion in 'Latest ME/CFS Research' started by Ben H, Aug 29, 2017.

  1. Ben H

    Ben H OMF Correspondent

    Hey guys,

    Here is the OMF newsetter for August:


    Community Symposium Summaries Now Published
    As you have probably heard by now, our recent Community Symposium on the Molecular Basis of ME/CFS at Stanford University was a huge hit! You can now read about the details in two pieces published by Raeka Aiyar, who emceed the symposium:
    • A high-level summary article, originally published on the Stanford School of Medicine Scope blog.
    • A detailed Storify post telling the story of the symposium, in an illustrative, easy-to-read format that combines photos, social media highlights, links, and useful resources for those who want to dig deeper.
    If you're still hungry for more, check out the full YouTube video of the symposium. Also, please read Dr. Davis' heartfelt welcome message to attendees. Thank you once again to all those who participated, either at Stanford or virtually, to make this an event to remember!

    The video will be released on the OMF YouTube Channel soon. The event DVD's can be ordered here.

    End ME/CFS Worldwide Tour Continues
    We are pleased to announce the next two events scheduled for the End ME/CFS Worldwide Tour.

    If you are in the area, please join Linda Tannenbaum on Saturday, September 16 in Minneapolis, MN or Saturday, November 4, 2017 in Boston, MA.
    Linda will share a research update and have a question and answer session with the audience.

    We have also arranged a special screening of UNREST with Linda's Minneapolis visit.
    If you are part of an active support group, can gather a group of 50 or more, and are interested in hosting an event in the US or Canada, please contact us.

    OMF Awarded Platinum Guidestar Status and Great NonProfits 2017
    As an internationally recognized non-profit, OMF is committed to ensuring that every donation we receive is used to support our mission to fund and initiate collaborative and ground-breaking research into chronic complex diseases so that patients will be able to live life more fully. To accomplish this, we are open with the activities and management of our organization.

    Because of our commitment to our mission and donors, we were awarded Platinum status for 2017 by Guidestar. This meets the highest standards of accountability and demonstrates our efficiency and effectiveness in supporting our mission.

    We were also awarded the 2017 Great NonProfit by you, our donors and supporters. Your reviews of OMF demonstrated our effectiveness and our relationship with our community.

    Thank you for your active and ongoing support. We remain committed to you, our mission and patients around the world.


    Team OMF is Growing

    Thank you to the many people worldwide who have launched events and activities to support research. This month, we are happy to highlight Cindy Siegel Shepler who is introducing OMF and ME/CFS to the American Contract Bridge League (ACBL) starting with her local Knoxville Association (KABC).

    In her honor, Cindy's friends held a special tournament and designated OMF as the recipient of funds raised at the event. To read more about the fun Knoxville event and other inspiring stories of support, please visit our Team OMF page.

    Get inspired. Join Team OMF and help accelerate research.

    We Now Accept Bitcoin


    At the request of donors in the US and internationally, OMF has set up an account with BitPay and can now accept donations of Bitcoin. (If you are not familiar with bitcoin, it is a "cryptocurrency" or a peer-to-peer digital payment and asset system.)

    Donors who are invested in Bitcoins can now donate their bitcoin directly to OMF. Your donation will be converted to USD and transferred immediately. If you are a Bitcoin investor/trader, we welcome your donation to support research. Please visit our website for more information. If you have any questions, please feel free to contact us.
    Open Medicine Foundation
    Tax ID: 26-4712664

    Our Purpose:
    • To fast-track revolutionary research for ME/CFS and related chronic complex diseases.
    • To support collaborative scientific research to discover molecular causes, find effective treatments, diagnostic markers, prevention approaches and cures.
    • To communicate, engage and inform the patient community.
    • To help drive & support global collaboration
    A Word from our CEO/President

    As you read above, in the last month we received our annual review by both Guidestar and Great NonProfits. It is an honor to lead OMF as it is recognized by both the non-profit sector and donors as exemplary. I want to personally extend my appreciation to you, our OMF family, for helping us to be recognized with these awards.

    We thank you for being our partner and sharing our vision for a world free from ME/CFS and related chronic complex diseases. We dream for the day when patients are able to live life fully.
    Last month was our mega ME/CFS event. We planned the research meetings hoping for positive support, increased collaboration, and renewed optimism. Our goals were surpassed with over 3,000 people from around the world, including researchers, clinicians, patients, family members and advocates all gathering to work towards a brighter tomorrow. I encourage you to follow our news in the coming months as we share new research proposals and plans to fast-track answers.

    Thank you being our partner.
    With hope,
    Linda Tannenbaum
    Join TEAM OMF.
    There are many ways to support our research.

    Turn Your Online Shopping
    Into Donations for Research
    Donate your old car, boat or plane
    and turn it into $$ to support research.
    (Available in the US only)
    Create your legacy.
    Please consider including OMF in your will & estate plans. Learn more.
    Host an Event or a Non-Event on CrowdChange.
    Invite family and friends to donate. Learn more about other
    Team OMF events and create your own fun.
    [​IMG]Like Our Page [​IMG]Follow us
    contact us

    Some great news in there!

    If you (or your family and friends) havn't signed up to receive the OMF monthly newsletters please do so here:


    All the latest news straight to your inbox :)



    @Janet Dafoe (Rose49) @AshleyHalcyoneH
    Last edited: Aug 29, 2017
    PinkPanda, MEMum, AndyPandy and 19 others like this.
  2. Jenny TipsforME

    Jenny TipsforME Senior Member

    Communication from OMF is great :)
  3. Ben H

    Ben H OMF Correspondent

  4. Dolphin

    Dolphin Senior Member


  5. Ben H

    Ben H OMF Correspondent

    We have been working on making bitcoin donations viable for a while now. I am really excited about this as it opens up a new door for potential donors not currently onboard, and also offers people more choice in how they give their donations.

    I am really into cryptocurrencies anyway so perhaps I am a little bias with my enthusiasm!

    Last edited: Aug 31, 2017
  6. dangermouse

    dangermouse Senior Member

    Janet Dafoe (Rose49) and MEMum like this.

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