International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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OMF funds Harvard Collaborative Center and expands Data Center!!!

Discussion in 'Latest ME/CFS Research' started by Ben H, May 23, 2018.

  1. Ben H

    Ben H OMF Correspondent

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    Hi guys,

    Some massive news!

    [​IMG]
    OMF creates Harvard ME/CFS Collaborative Research Center and expands Stanford Data Center

    Dear all,

    ME/CFS Collaborative Research Center at Harvard:

    We are proud to announce that OMF has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center.

    The new Harvard Center will be led by OMF Scientific Advisory Board members Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD, of Harvard University and will work synergistically with the ME/CFS Collaborative Research Center at Stanford led by Ronald W. Davis, PhD, of Stanford University, also funded by OMF. All science funded by OMF continues to be under the overall direction of our Scientific Advisory Board, directed by Ron Davis.

    The goals for this new Harvard Collaborative Center are twofold. First is a basic research goal: to collect molecular data on muscle and other tissues affected by ME/CFS. Studies will include evaluation of patient muscle biopsies as compared to controls including genomics, proteomics, and ultrastructural analysis. Dr. Tompkins has extensive experience with such analysis on tissue from burn patients. He will be able to perform muscle biopsies, and possibly biopsies of other tissue types, greatly expanding the research, which has so far involved the analysis of blood cells. One focus of this new work will be to investigate the etiology of Post-Exertional Malaise (PEM).

    The second goal is to establish a Clinical Trials Network to facilitate multi-center clinical studies on potential effective treatments for ME/CFS. The clinical resources at the MGH under Ron Tompkins, MD, are very extensive, making this an ideal site for overseeing and conducting clinical studies. This is a great opportunity to establish standards and the infrastructure for rigorous clinical trials.

    Stanford ME/CFS Data Management and Coordination Center:

    OMF is also funding the expansion of the Stanford Data Center for the Severely Ill Patients (SIPS) Study to encompass all the data from the Stanford and Harvard ME/CFS Collaborative Research Centers, as well as data from any other research we are funding.

    The clinical results from the SIPS are currently already open to researchers with access via our website. This expanded data center will give researchers quick access to massive amounts of research data.

    I would like to extend a huge personal thank you to all of our tremendous supporters who continue to make this urgent research possible and for being our partners in this great effort to put an end to ME/CFS. We truly could not do this without you; together we will find a cure.

    With hope for all,

    [​IMG]
    Linda Tannenbaum
    CEO/President

    P.S. For OMF friends living outside the U.S., if you would like to continue receiving OMF's exciting news in your inbox and have not yet re-registered, please sign-up today or we will have no choice, due to GDPR rules, to remove you from our mailing list after May 25th.

    [​IMG]

    www.omf.ngo


    B

    @Janet Dafoe (Rose49) @AshleyHalcyoneH @marilynbsg
     
    Last edited: May 23, 2018
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  2. Dakota15

    Dakota15 Senior Member

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    Awesome, awesome news!! :):)
     
  3. ljimbo423

    ljimbo423 Senior Member

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    Nice to have Harvard onboard!!!:jaw-drop: The more the merrier!:)

    Jim
     
    Last edited: May 23, 2018
  4. Ben H

    Ben H OMF Correspondent

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    Indeed @ljimbo423 . This is just amazing news. It’s hard to overstate just how important/amazing/insertexclamationhere this is.


    B
     
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  5. ljimbo423

    ljimbo423 Senior Member

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    Yes, incredible!! Sooo very exciting!!:woot:

    Jim
     
  6. Dakota15

    Dakota15 Senior Member

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    Having Harvard's presence is huge news! Thanks for sharing @Ben H
     
  7. Ben H

    Ben H OMF Correspondent

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    Just the messenger :)


    B
     
  8. Diwi9

    Diwi9 Administrator

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    I saw VanElzakker mention on Twitter that a big announcement was coming...I'm guessing this is it. It feels really good to see research universities like Stanford, Cornell, Columbia and Harvard all having ME/CFS biomedical research.

    The NIH claims it cannot provide grants with the current dearth of applications. The private sector is bringing in more and more researchers; hopefully this means more grant applications. Will the NIH finally step up and really fund these premier research institutions that ARE INTERESTED in ME/CFS???!!!

    Thank you OMF for taking the lead!
     
  9. Mary

    Mary Moderator

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    We won't shoot you ;)

    Wow - this is amazing, thanks for the update @Ben H!! :thumbsup:
     
  10. Gemini

    Gemini Senior Member

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    Excellent!!! :thumbsup::)

    More scientific resources, research directions, & an outstanding team with Ron at the helm!

    Also a major step-- expansion of Stanford's Data Center & data sharing!

    Many thanks for posting such good news @Ben H, & to all who worked to make these things happen!
     
  11. Gemini

    Gemini Senior Member

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  12. Murph

    Murph :)

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    1. Good for OMF for funding more than just Stanford. Spending money is hard - ramping up / expanding can be inefficient - so it is smart to spread it around.

    2. If the Stanford brand name helped draw attention to our cause the Harvard brand oughta do even more!

    3. seeding interest in MECFS into more research institutions should give us a bigger chance of attracting the next generation of researchers.

    tl;dr good job.
     
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  13. Ben H

    Ben H OMF Correspondent

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    Totally agree @Murph . Though I believe Stanford rates higher than Harvard academically, interestly. Maybe Harvards brand name is stronger, im not in the US. I maybe wrong, but either way having them both have collaborative research centres is beyond brilliant.

    tl;dr bloody fantastic news


    B
     
  14. Diwi9

    Diwi9 Administrator

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    @Ben H - It's an East Coast/West Coast thing. The East has old roots that are long established and close proximity to the federal center of power in Washington D.C., so "status" in that respect. Stanford is at the epicenter of so much booming research in tech, with a lot of Pacific Rim influence, it's location provides a different sort of advantage when it comes to innovation and investment. That's why it's too bad the NIH didn't fund Ron...we need diverse and creative approaches to target this disease as we are still looking for the mechanism.
     
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  15. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Stanford's reputation is now #1 for technology, innovation, and biotechnology, and interdisciplinary collaboration (e.g., bio and engineering, which is what Ron does a lot of). The genetics dept at Stanford is ranked #1 in the world. Stanford has largely generated Silicon Valley. Boston is considered #2. Having both working on ME/CFS is fantastic!
     
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  16. Ben H

    Ben H OMF Correspondent

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    Makes sense. I was being pretty reductive, based off charts and various research.


    B
     
  17. nettle_tea

    nettle_tea

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    I am SO EXCITED! This is happening less than 5 miles from my house! I get care at these hospitals already. I hope that - at the very least - it means I'll have an easier time finding specialists who are ME/CFS literate.

    (And, coincidentally, I work at Harvard, although I know nothing about the medicine side of things - I'm in a rare books library.)
     
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  18. alex3619

    alex3619 Senior Member

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    Stanford and Harvard are my two favourite academic institutions in the USA. I see really good things from both, at least in medicine and allied fields. This is an opportunity that I am very hopeful for.
     
    Ben H, Mary and Janet Dafoe (Rose49) like this.
  19. Silencio

    Silencio Senior Member

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    The other good thing is that outside of academia, the Boston area is a world leader in biotech, pharmaceuticals and healthcare industry. Just having a center there is huge for collaboration options and PR around the disease.

    Am so excited about this!
     
    Murph, Ben H, Diwi9 and 2 others like this.
  20. Dakota15

    Dakota15 Senior Member

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    @Ben H or @Janet Dafoe (Rose49) Did I see it right that Dr. Davis and the Stanford Team received an anonymous $1 million donation today?

    Every bit helps if so!
     
    Silencio likes this.

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