Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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OI/dysautonomia Dr NY/NJ recommendations

Discussion in 'ME/CFS Doctors' started by Pink, Feb 12, 2018.

  1. Pink

    Pink Senior Member

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    Tri state area
    I am experiencing a lot more dizziness, feeling sick to my stomach and head after any kind of activity, rapid heartbeat even while resting, and my dr and I suspect some kind of OI/POTS/Dysautonomia.

    I contacted Dr Tullo in NJ, but apparently he is only cardiology based. Does an ekg, if it's ok he sends you on. I had an ekg done not long ago, and it was normal.

    My dr gave me the number of NYU's dysautonomia center, & even contacted them for me (after they didn't respond to my messages. you can't talk to anyone, just leave a vm). After a few weeks, they told my dr to send me to a neurologist.
    However, I don't think a standard neurologist has a lot of experience with these issues.

    I checked the dysautonomia websites, but I'd like to hear from you guys if you have any positive/negative experiences, as those sites don't allow reviews.

    Thank you
     
    echobravo likes this.

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