merylg
Senior Member
- Messages
- 841
- Location
- Sydney, NSW, Australia
I finally found some info which seems to describe what happened to my eyes, after I built up high levels of serum B12 & red cell folate (on methylation protocols), then added 100 mg Gabapentin for about a week.
https://dystoniasufferer.wordpress.com/2012/09/29/ocular-vasospasm-pain-behind-the-eyes/
http://www.ncbi.nlm.nih.gov/pubmed/15182034
I didn't experience pain, just a popping sensation behind my eyeballs & a sudden feeling of pressure there & within the eyeballs. These sensations resolved quickly, but my eyes have not been the same since. I now have ongoing Dry Eyes, needing drops & get overnight dehydration/shrinking of the eyeballs.
I have had 2 optometrist's checkups & one opthalmologist examination. I am disappointed that not one of them raised the possibility of Ocular Vasospasm. I did learn that my eye pressures were within the normal range, on the low side which is supposed to be a good thing. I also learned that the lipid layer is missing from my tear film, so the mucus layer can get dragged & cause temporary blurred vision...(there are 3 layers making up normal tear film...aqueous, mucus, lipid).
Looks like the test to get would be Endothelin - 1 levels. I'll ask the Neurogeneticist (Mitochondrial expert) about this whole issue next week. I think it might tie in with my migraines & general vascular issues.
Current strategies I am using are:
Fish Oil
Cod Liver Oil
B2 Riboflavin
Magnesium malate
Lubricating eye drops (single-use, preservative-free)
Prescription sun-glasses for driving
Drinking more water
Stress-free lifestyle (haha only kidding!!!)
Less computer use to increase blink-rate (I wish!)
Oh I listened to an mp3 on Seizures, Strokes & Migraines and L-Arginine was mentioned in relation to vasospasm prevention. The talk was by Neurologists who treat Mito patients. I will edit & post the link here later. How would L-Arginine fit with ME/CFS & ???Viruses??? I need to read more!
https://itunes.apple.com/podcast/audio-podcast/id290467730?mt=2
#15
https://dystoniasufferer.wordpress.com/2012/09/29/ocular-vasospasm-pain-behind-the-eyes/
http://www.ncbi.nlm.nih.gov/pubmed/15182034
I didn't experience pain, just a popping sensation behind my eyeballs & a sudden feeling of pressure there & within the eyeballs. These sensations resolved quickly, but my eyes have not been the same since. I now have ongoing Dry Eyes, needing drops & get overnight dehydration/shrinking of the eyeballs.
I have had 2 optometrist's checkups & one opthalmologist examination. I am disappointed that not one of them raised the possibility of Ocular Vasospasm. I did learn that my eye pressures were within the normal range, on the low side which is supposed to be a good thing. I also learned that the lipid layer is missing from my tear film, so the mucus layer can get dragged & cause temporary blurred vision...(there are 3 layers making up normal tear film...aqueous, mucus, lipid).
Looks like the test to get would be Endothelin - 1 levels. I'll ask the Neurogeneticist (Mitochondrial expert) about this whole issue next week. I think it might tie in with my migraines & general vascular issues.
Current strategies I am using are:
Fish Oil
Cod Liver Oil
B2 Riboflavin
Magnesium malate
Lubricating eye drops (single-use, preservative-free)
Prescription sun-glasses for driving
Drinking more water
Stress-free lifestyle (haha only kidding!!!)
Less computer use to increase blink-rate (I wish!)
Oh I listened to an mp3 on Seizures, Strokes & Migraines and L-Arginine was mentioned in relation to vasospasm prevention. The talk was by Neurologists who treat Mito patients. I will edit & post the link here later. How would L-Arginine fit with ME/CFS & ???Viruses??? I need to read more!
https://itunes.apple.com/podcast/audio-podcast/id290467730?mt=2
#15