The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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NPR: For People With Chronic Fatigue Syndrome, More Exercise Isn't Better

Discussion in 'General ME/CFS News' started by Cheshire, Oct 2, 2017.

  1. Cheshire

    Cheshire Senior Member

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    by Michaeleen Doucleff

    http://www.npr.org/sections/health-shots/2017/10/02/554369327/for-people-with-chronic-fatigue-syndrome-more-exercise-isnt-better?utm_campaign=storyshare&utm_source=twitter.com&utm_medium=social
     
    L'engle, Dolphin, sb4 and 38 others like this.
  2. Yogi

    Yogi Senior Member

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    An important bit in this article is that it doesn't just take aim at PACE trial but also the very foundation that Wessely/White/Sharpe's whole life long careers and research were based on.

    First time I have seen this referred to in mainstream media.

    P.S. "erroneous" seems rather generous to describe this paperl!

    This is major turning point for the psychs.

    Great article and we should thank Michaeleen Doucleff

    http://www.npr.org/people/348778932/michaeleen-doucleff
     
    Last edited: Oct 2, 2017
  3. Kalliope

    Kalliope Senior Member

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    Yes, great article! Here is the journalist's twitter account for those who want to praise her. It is not possible to give comments under the article.

    Edit to add: The article is currently not on facebook either.
    Edit to add:
     
    Last edited: Oct 2, 2017
  4. Philipp

    Philipp

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    On the one hand, it is great that this kind of stuff finally gets out there.

    On the other hand, we are in a situation where we are actually happy about articles that basically say 'breaking news: smoking more and more does not actually cure lung cancer'.

    Well, I'll take it for now.
     
    Dolphin, sb4, Solstice and 18 others like this.
  5. Chrisb

    Chrisb Senior Member

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    I started a thread on this paper in August, but it did not attract attention
    Is this a still-smoking gun? Wessely, David, Butler, Chalder -1989
    Discussion in 'General ME/CFS Discussion' started by Chrisb, Aug 16, 2017.
    Copy thread to group
     
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  6. Kalliope

    Kalliope Senior Member

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    :woot:
     
  7. Kalliope

    Kalliope Senior Member

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    NPR has shared it on Facebook now, if anyone wants to join the discussion. Discussion seems quite good so far.
     
    ahimsa, Dolphin, mango and 3 others like this.
  8. Barry53

    Barry53 Senior Member

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    Still kills it stone dead though.
     
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  9. Esther12

    Esther12 Senior Member

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    Great to have coverage like this in a venue which will reach those outside of the CFS bubble.
     
    Dolphin, mango, Wonko and 7 others like this.
  10. alex3619

    alex3619 Senior Member

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    First we needed critical mass in the CFS and ME and related populations. Then we need critical mass in academia. Then doctors. Then the rest is history.

    We appear to be moving into the second stage.
     
  11. viggster

    viggster Senior Member

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    @searcher is too modest to admit this but it was her connection with the reporter that led to this story. Michaeleen is looking to do more stories on ME/CFS and she certainly gets it. Good to have another top reporter interested.
     
  12. Riley

    Riley Senior Member

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    Very cool. I know that she spoke with Dr. Lapp by phone, but I guess his comments didn't make the piece.
     
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  13. viggster

    viggster Senior Member

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    Well, his comments informed the piece and if the interview was a good one, the reporter gained a deeper understanding of the issues. Also, talking to a doctor can help a reporter find appropriate patients to talk to. Too often interviewees feel like they've wasted their time if they talk to a reporter and don't get quoted. But that's rarely the case.
     
    Valentijn, Dolphin, Riley and 11 others like this.
  14. Andrew

    Andrew Senior Member

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    I'm thrilled that we have this information we can show to doctors. At the same time, I can't help but feel anger toward all these agencies who refused to listen to us all these years, even when we offered evidence they were wrong.

    I wonder if anyone at the CDC feels remorse for all the harm they have done to us.
     
    Dolphin, mango, trishrhymes and 2 others like this.
  15. Alvin2

    Alvin2 If humans were rational...

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    When pigs fly :bang-head:

     

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