NotThisGuy
Senior Member
- Messages
- 312
Hi,
Im pretty worse these days...
I have low blood pressure (for a long time), orange urine (i guess no bile flow), feel like dying, suicidal depression sometimes blood in urine, without any known cause. (i believe its nephritis), shortness of breath, anxiety.
The strange thing is: I can't take any electrolytes. Every electrolyte I try gives my overdose symptoms.
Somethings very wrong with my kidneys (and liver), but blood panels are ok, so no one cares.
I believe its low ATP (confirmed by lab) and low glutathione.
Everytime I had an ATP boost by supplements the electrolyte intolerance got better
To my history: I'm sick for about 10 years, but got significantly worse after exposure to mercury and lead.
This left me with huge food intolerance (pretty much Im eating only potatoe, olive oil and chicken breast for 1.5 years).
Alongside with histamine and MCAS. I had trouble with MCAS and histamine before, but not nearly this severe. I also have MCS.
I can't take any supplements because even tiny doses make me worse.
I used to take lots of supplements 1 year ago but stopped tolerating them after I started methylfolate, Q10 (not the reduced one) and selenium.
Mild intolerance started with methylfolate and Q10
Selenium crashed me totally. (pale, anemia, anxiety, panic, no appetite, intolerant to all supplements)
The only good phase after that, where I also tolerated supplements again was when I took B1.
Had 2 very great days and 2 good months. Then it stopped working and I was worse than before.
After that copper seemed to help for a while (could only tolerate 200mcg a day). I supplemented it for about 3 weeks and now it only makes my depression worse.
But I'm pretty sure I was deficient, because my blood levels had an slight increase in MCV and decrease in MCHC. That never happened before after my exposure to heavy metals.
Also my thirst decreased (I was drinking 6 liter water before I took copper, now Im down to 3 liter)
After the copper success I took some tyrosine, because I thought maybe low norepinephrine was causing my low blood pressure.
(again only tiny amounts). The first 2 weeks were great! Some improvement with all my symptoms.
But then suicidal depression hit me. I had to drop the tyrosine since my mood got very dark shortly after taking it. (alongside I took some copper, but not frequently and only little dosage and also s. boulardii)
I don't know which of them made me so much worse. I read that boulardii contains ALA, but that it's in a complex and doesn't get absorbed very well. Might this be why Im so much worse? Because it startet chelation?
The only thing right now that keeps me alive is the sun.
I figured it could be the IR light of the sun, which is making me better so I bought a an NIR bulb (NO SAUNA).
I pointed it on my liver for 15 minutes and that night I thought I would die.
Huge thirst that didn't went away. Brown urine, orange urine, red urine (blood).
I'm still recovering from it, that was 3 days ago.
I guess the IR made inflammation worse. Now I can't even tolerate the sun that good anymore.
Maybe im depleted in glutathione? Maybe my bileflow completely stopped? I dont know.
The sun gives me now similiar reaction like the IR-lamp did, but it improves my breathing troubles!!!! and my depression. So there is something else in the light I have to go for.
I did some lab tests and few things are concerning me:
Borderline low cortisol
low testosterone (I read that this can cause depression)
Thyroid is OK. only RT3 is borderline high
very low ALA (lipoic) levels
borderline low copper (before I started taking copper)
borderline low ceruloplasmin
borderline low zinc
borderline low molybdenum
high magnesium (went down after I took copper, still too high, but borderline high)
potassium, calcium, natrium all ok. But natrium is borderline low.
Vit. D: 24ng/ml (19-72 normal)
B12: borderline high in RBC
Iron: borderline high in RBC, but low ferritin and free iron.
low uric acid and low urea.
high bilirubin.
high IgE
high sIgA (stool sample)
methionine: 15 µmol/l (6-40) - little lowish
glutamine: 666 µmol/l (470-758)
glutamic acid: 41 µmol/l (28-92)
glycine: 289 µmol/l (120-387)
taurine: 203 µmol/l (57-228)
cysteine: 75 µmol/l ( 33-82)
All other aminocadis are lowish. The ones listed above where those I supplemented last year. So maybe thats why they aren't low.
I added the full list as PDF.
Now the question is: Why is my cysteine this high?
What is the missing cofactor to make cysteine to glutathione?
I googled and found glutamic acid, which lowish.
Now Im afraid to supplement it due increase of depression or anxiety.
Also I thought glutamine can convert to glutamic acid.
If I try to take zinc I get instant low blood pressure, anemia with breathing troubles (like my lung isn't stretching enough). This only goes away with cortison. (I take ACE but even there tiny dosage lowers my blood pressure).
I hope someone can suggest something I can do about my situation.
Thank you very much.
EDIT:
UTI is ruled out.
Also I dont think it is cancer. The kidney problems started with lead exposure.
(I had a friend with me in the room and he also has the same problems/symptoms like me, since that day)
Homocysteine: 7 µmol/l (anything <10 is ok)
Im pretty worse these days...
I have low blood pressure (for a long time), orange urine (i guess no bile flow), feel like dying, suicidal depression sometimes blood in urine, without any known cause. (i believe its nephritis), shortness of breath, anxiety.
The strange thing is: I can't take any electrolytes. Every electrolyte I try gives my overdose symptoms.
Somethings very wrong with my kidneys (and liver), but blood panels are ok, so no one cares.
I believe its low ATP (confirmed by lab) and low glutathione.
Everytime I had an ATP boost by supplements the electrolyte intolerance got better
To my history: I'm sick for about 10 years, but got significantly worse after exposure to mercury and lead.
This left me with huge food intolerance (pretty much Im eating only potatoe, olive oil and chicken breast for 1.5 years).
Alongside with histamine and MCAS. I had trouble with MCAS and histamine before, but not nearly this severe. I also have MCS.
I can't take any supplements because even tiny doses make me worse.
I used to take lots of supplements 1 year ago but stopped tolerating them after I started methylfolate, Q10 (not the reduced one) and selenium.
Mild intolerance started with methylfolate and Q10
Selenium crashed me totally. (pale, anemia, anxiety, panic, no appetite, intolerant to all supplements)
The only good phase after that, where I also tolerated supplements again was when I took B1.
Had 2 very great days and 2 good months. Then it stopped working and I was worse than before.
After that copper seemed to help for a while (could only tolerate 200mcg a day). I supplemented it for about 3 weeks and now it only makes my depression worse.
But I'm pretty sure I was deficient, because my blood levels had an slight increase in MCV and decrease in MCHC. That never happened before after my exposure to heavy metals.
Also my thirst decreased (I was drinking 6 liter water before I took copper, now Im down to 3 liter)
After the copper success I took some tyrosine, because I thought maybe low norepinephrine was causing my low blood pressure.
(again only tiny amounts). The first 2 weeks were great! Some improvement with all my symptoms.
But then suicidal depression hit me. I had to drop the tyrosine since my mood got very dark shortly after taking it. (alongside I took some copper, but not frequently and only little dosage and also s. boulardii)
I don't know which of them made me so much worse. I read that boulardii contains ALA, but that it's in a complex and doesn't get absorbed very well. Might this be why Im so much worse? Because it startet chelation?
The only thing right now that keeps me alive is the sun.
I figured it could be the IR light of the sun, which is making me better so I bought a an NIR bulb (NO SAUNA).
I pointed it on my liver for 15 minutes and that night I thought I would die.
Huge thirst that didn't went away. Brown urine, orange urine, red urine (blood).
I'm still recovering from it, that was 3 days ago.
I guess the IR made inflammation worse. Now I can't even tolerate the sun that good anymore.
Maybe im depleted in glutathione? Maybe my bileflow completely stopped? I dont know.
The sun gives me now similiar reaction like the IR-lamp did, but it improves my breathing troubles!!!! and my depression. So there is something else in the light I have to go for.
I did some lab tests and few things are concerning me:
Borderline low cortisol
low testosterone (I read that this can cause depression)
Thyroid is OK. only RT3 is borderline high
very low ALA (lipoic) levels
borderline low copper (before I started taking copper)
borderline low ceruloplasmin
borderline low zinc
borderline low molybdenum
high magnesium (went down after I took copper, still too high, but borderline high)
potassium, calcium, natrium all ok. But natrium is borderline low.
Vit. D: 24ng/ml (19-72 normal)
B12: borderline high in RBC
Iron: borderline high in RBC, but low ferritin and free iron.
low uric acid and low urea.
high bilirubin.
high IgE
high sIgA (stool sample)
methionine: 15 µmol/l (6-40) - little lowish
glutamine: 666 µmol/l (470-758)
glutamic acid: 41 µmol/l (28-92)
glycine: 289 µmol/l (120-387)
taurine: 203 µmol/l (57-228)
cysteine: 75 µmol/l ( 33-82)
All other aminocadis are lowish. The ones listed above where those I supplemented last year. So maybe thats why they aren't low.
I added the full list as PDF.
Now the question is: Why is my cysteine this high?
What is the missing cofactor to make cysteine to glutathione?
I googled and found glutamic acid, which lowish.
Now Im afraid to supplement it due increase of depression or anxiety.
Also I thought glutamine can convert to glutamic acid.
If I try to take zinc I get instant low blood pressure, anemia with breathing troubles (like my lung isn't stretching enough). This only goes away with cortison. (I take ACE but even there tiny dosage lowers my blood pressure).
I hope someone can suggest something I can do about my situation.
Thank you very much.
EDIT:
UTI is ruled out.
Also I dont think it is cancer. The kidney problems started with lead exposure.
(I had a friend with me in the room and he also has the same problems/symptoms like me, since that day)
Homocysteine: 7 µmol/l (anything <10 is ok)
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