Just got this email:
Just reading #MEAction's report - well done, @JaimeS!
NIH said:As you know, the NIH posted an open invitation in the form of a Request for Informationso that researchers, healthcare providers, patient advocates and health advocacy organizations, scientific and professional organizations, and all others could provide their thoughts about research strategies for ME/CFS.
We received many thoughtful comments and ideas. The comments are now posted online at https://www.nih.gov/research-traini...ih-requested-comments-me/cfs-research-effortsfor all to see.
Please note that certain information has been removed (e.g., all emails as well as names and personal information that could be used to identify patients). Names of healthcare providers, researchers and representatives from patient organizations remain.
Over the next few months, the Trans-NIH ME/CFS Working Group will review all of the responses and these comments to help guide research strategies and initiatives to advance our knowledge of ME/CFS and eventually find a treatment for this devastating disease. Once the responses are reviewed, the Working Group will prepare a summary that will be posted online (www.nih.gov/mecfs).
Please check the NIH ME/CFS website (www.nih.gov/mecfs) for this information as well as updates of other ME/CFS research activities at the NIH.
Sincerely,
Marian Emr
Director, Office of Communications and Public Liaison
National Institute of Neurlogical Disorders and Stroke/NIH
On behalf of the Trans-NIH ME/CFS Working Group
Just reading #MEAction's report - well done, @JaimeS!