Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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NIH April meeting agenda -- will be open to the public!

Discussion in 'Action Alerts and Advocacy' started by Hope123, Feb 21, 2011.

  1. Hope123

    Hope123 Senior Member

    The NIH State of the Knowledge Conference will be open to the public. People can attend in person (there is a space to ask for disability accomomdations) and the Conference will also be webcasted live and archived for later viewing.

    Unlike the CFSAC meetings, this is primarily a scientific meeting but I encourage people to watch it live or later as

    1) the government counts how many people view the meetings
    2) you might learn something new!
    3) you can write to NIH about anything that doesn't make sense or doesn't ring true
    with your experience of ME/CFS

    I also encourage our international friends to watch and participate. As the PACE study shows, science is international and what is discussed here might well too affect the science in your countries.


    State of the Knowledge Workshop
    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research

    April 7-8, 2011

    Building 31, Conference Room 6C10
    National Institutes of Health, Bethesda, MD 20892

    This NIH workshop will bring together subject experts who will discuss multiple aspects of ME/CFS, including epidemiology, etiology, pathophysiology, diagnosis and treatment. The workshop panelists will identify gaps in knowledge and opportunities for new biomedical research.

    Workshop Agenda, Online Registration, and Visitor/Hotel Information. This workshop is open to the public. Please note that attendance is limited, and we encourage registration for those attending in person. For those who are unable to attend, the workshop will be available via NIH VideoCasting ( both during and after the event.

    Individuals with disabilities who need reasonable accommodation should indicate your needs on the registration or contact Infinity Conference Group at (703) 925-9455 ext. 0 or by e-mail at Sign Language Interpreters can be provided if requested.

    This workshop is sponsored by the NIH Office of Research on Womens Health in collaboration with the Trans-NIH ME/CFS Research Working Group.
  2. Emma


  3. Hope123

    Hope123 Senior Member

    Emma, no, you aren't missing anything. The conference organizers have been working very hard to get the speakers they want at the meeting so they haven't been able to finalize it yet, from my understanding.
  4. omegaman


    Just as important as who will be speaking is who will be listening to the speakers. I wonder if a list of attendees will be made.

    It would be interesting in the future to see if any of the attendees actually put in for ME/CFS research grants and or recieve ME/CFS research grants in the future.

    That will be the best way to measure the conferences success at stimulating new research.
  5. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    WA, USA
    but the preliminary agena is super amazing. Thanks and kudos to Dr. Dennis Mangan and the other folks from NIH and AHRQ*, Dr. Lenny Jason, Dr. Nancy Klimas, Mary Schwitzer, Dr. Suzanne Vernon, Pat Fero, Ken Friedman, and whomever else was tapped to work on the project, for all their ongoing work in putting this together!

    *(I think some of our emails paid off that someone from AHRQ randomly volunteered to help)
  6. justinreilly

    justinreilly Senior Member

    NYC (& RI)
    Wow, the agenda really is great! Only biomed topics, no psychiatry or psychology!!

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