International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
Discuss the article on the Forums.

Nicola, another young German woman loses her life to ME

Discussion in 'General ME/CFS News' started by Countrygirl, Feb 11, 2018.

  1. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,745
    Likes:
    19,381
    UK
    https://nicolaschmid.wordpress.com/23-01-2018/

    [​IMG]
    [​IMG]

    03rd February 2018

    Nicola was buried on Saturday, February 3 in the closest family and friends in her hometown in the Allgäu. We would like to thank all those who supported and accompanied Nicola on her last journey.

    [​IMG]


    Pray, laugh, think of me.

    Pray for me, so that my name will be spoken in the house, as it always was,

    without any particular emphasis, without the trace of a shadow.

    Life's meaning is what it has always been.

    The string is not cut through.

    Why should not I be in your thoughts anymore,

    just because I'm no longer in your field of vision?

    I'm not far away, just on the other side of the road.

    (after Charles Péguy)
     
    L'engle, Mel9, -Jessie- and 8 others like this.
  2. PatJ

    PatJ Forum Support Assistant

    Messages:
    2,536
    Likes:
    6,917
    Canada
  3. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,745
    Likes:
    19,381
    UK
    This is a quote we can run with when advocating and raising awareness.

    Thank you, Nicola!

    We are so very sad to lose yet another of our community.

    So terrible for her loved ones!

    She must be placed on our memorial page.
     
    Sushi, Joh, kelly8 and 2 others like this.
  4. perrier

    perrier Senior Member

    Messages:
    697
    Likes:
    1,274
    Thank you for posting. Thank you. Rest In Peace dear Nicola, far away from pain and torment.

    This is all horrific. Several times a week we hear if another young person passing due to this scourge. Where are the powers that be? Do they not hear this?
     
    Sushi, Joh, mrquasar and 1 other person like this.
  5. Diwi9

    Diwi9 Senior Member

    Messages:
    831
    Likes:
    2,908
    USA
    This is always difficult news and it's coming so often. All young beautiful women who had purposeful lives, before this disease stole health and life from them. Who out there is paying attention?

    Rest in peace, Nicola.
     
    Sushi, Joh, Countrygirl and 1 other person like this.
  6. perrier

    perrier Senior Member

    Messages:
    697
    Likes:
    1,274
    Yes, who is paying attention?
    Do they even care?
     
    Joh, Diwi9, shannah and 1 other person like this.
  7. shannah

    shannah Senior Member

    Messages:
    1,405
    Likes:
    1,692
    It doesn't matter if they care - We Care!
    And it's up to us to make them pay attention. 'Louder and stronger' is needed!
     
  8. perrier

    perrier Senior Member

    Messages:
    697
    Likes:
    1,274
    You know what I mean, I’m sure. I mean when folks were dying of aids The Whole world sat up, and got to work.
     
    Joh, Countrygirl and shannah like this.
  9. Diwi9

    Diwi9 Senior Member

    Messages:
    831
    Likes:
    2,908
    USA
    Yes...ME kills. We are in a crisis in the US over opioid-related deaths...but somehow ME suicides don't get the acknowledgment of being a crisis...globally.
     
    Joh and Countrygirl like this.
  10. perrier

    perrier Senior Member

    Messages:
    697
    Likes:
    1,274
    Same here in Canada.
     
    Diwi9 likes this.
  11. Diwi9

    Diwi9 Senior Member

    Messages:
    831
    Likes:
    2,908
    USA
    There is a proposal to fight the opioid epidemic with $8 billion in federal funds, just for some perspective...when there is a crisis...there is a will to find money.
     
    Joh and IThinkImTurningJapanese like this.
  12. perrier

    perrier Senior Member

    Messages:
    697
    Likes:
    1,274
    Of course, the police find dead folks in various places who have had overdoses, but here is a situation, where suffering folks discreetly take their own lives. So, it doesn't hit the media. Here in Canada, there are daily reports about what police have found in this or that city regarding opioid overdose.

    Of course, there is money.

    The problem is also that when you say suicide the response often is: oh, there must have been psychological problem. There just isn't enough public understanding that this illness is a monster that torments folks around the clock, and there are not medications to stop the symptoms, let alone erase the illness. NO one believes that such an illness can exist. Friends saw Unrest, and told me they couldn't believe it at first, and said they found it hard to watch. And here we all are, living with this every single moment of the day and night.
     
    Joh likes this.
  13. Diwi9

    Diwi9 Senior Member

    Messages:
    831
    Likes:
    2,908
    USA
    Spot on @perrier. Same here, one friend could not complete watching Unrest. Her comment, "Laying around like that must lead to deconditioning and just makes things worse." We have a few key people on our side, who understand our Catch-22...and they are working hard to crack this mess. No one takes their life because they are just psychologically upset about their situation. They take their life because this form of un-living with ME becomes physically unbearable.
     
    Mel9, Joh and perrier like this.
  14. perrier

    perrier Senior Member

    Messages:
    697
    Likes:
    1,274
     
  15. perrier

    perrier Senior Member

    Messages:
    697
    Likes:
    1,274
    I just read Nicola's poetry; it's wonderful. I also read her final note. I am very moved by her words but terribly unsettled about what is happening to all these young people.
     
    Mel9, Joh and TreePerson like this.
  16. MartinDH

    MartinDH Senior Member

    Messages:
    173
    Likes:
    447
  17. maybe some day

    maybe some day Senior Member

    Messages:
    428
    Likes:
    1,681
    San Francisco bay area
    Another life, so incredibly sad. Angered what this insidious illness does, and that Drs. turn away from it.
     
    Joh likes this.
  18. alex3619

    alex3619 Senior Member

    Messages:
    12,837
    Likes:
    36,454
    Logan, Queensland, Australia
    I wonder if we should be calling it Unlife?
     
    Sandman00747, Mel9, Diwi9 and 2 others like this.
  19. Sushi

    Sushi Moderation Resource Albuquerque

    Messages:
    15,430
    Likes:
    23,815
    Albuquerque
    I copied the posts that are specifically about Nicola to a new page in "In Memory of." I left copies here so that we can continue the discussion of the tragedy of such losses in this thread.
     
    Mel9, Diwi9, Joh and 1 other person like this.
  20. perrier

    perrier Senior Member

    Messages:
    697
    Likes:
    1,274
    Yes, it is really Un-life, and Un-living.

    Life is movement. That's why we all love dance, because this is the apex of movement.
    In this monstrous condition, movement, that which is natural, that which characterises life from death, is punished by PEM. And to reverse PEM one must lie still like a corpse in order to get the symptoms down.

    Lord in Heaven, when will the powers that be understand the urgency of this illness When will the world turn to it as they did with AIDS.
     
    PatJ, Cornishbird and Joh like this.

See more popular forum discussions.

Share This Page