• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

NICE guidelines change?

brenda

Senior Member
Messages
2,266
Location
UK
Hi

I have some information from MCS-Aware regarding the guidlines for severe cfs/me that says the relevant section regarding advice that chemical sensitivitites are foud in severe cfs/me are in chapter 7 "7.4.1" under support. However they seem to have been removed. Does anyone know anything about this?
 

ukxmrv

Senior Member
Messages
4,413
Location
London
I've just looked through the current copy of the NICE Guideline's and under 7.4.1 there is

"A full functional assessment of the personal and domestic needs of the patient
within the home should be completed (for example, people with severe CFS/ME
are often sensitive to light, noise and chemicals, so may require quiet, dark
surroundings with no or limited use of household products such as cleaning
products or air fresheners), as well as an assessment of the carer’s needs.
Carers for people with severe CFS/ME will need support and healthcare
professionals should provide information on the sources noted above. "

https://www.nice.org.uk/guidance/cg53/evidence/full-guideline-pdf-196524109

22 August 2007 PDF 787.15 KB