Jesse2233
Senior Member
- Messages
- 1,942
- Location
- Southern California
Hi everyone,
First off thank you to everyone for the support and advice you've provided me so far. This is a special place and I'm glad I found you all.
I have some questions about properly educating my caregivers and deciding on a treatment protocol.
Questions
1. Is there a recommended book / PDF I could provide to my caregivers to help them understand assiting someone with this condition?
2. Does the protocol below seem like a reasonable first approach or should I try something like @Freddd's protocol instead?
3. Should I ask Dr Enlander for a Hepapressin mix without the folic acid and glutathione to help guard against a crash?
My goals are to stop any worsening of my symptoms and of course to move toward recovery.
The rationale of my protocol is to attack things from both the immunomodulating and anti-viral perspectives. I'm also including various symptomatic supplements like @Hip 's anti-anxiety combo.
Let me know if you think I risk a major crash with any of these, or if they'll interact negatively.
Doctors:
- Working with Dr Enlander over phone / email, a local MD / ND, and ad hoc specialists.
- Have an appointment with Dr Chia in May.
Proposed protocol:
- Pacing, aggressive resting, gentle stretching, acupuncture, heart rate / oximeter monitoring
- Hepapressin (or Nexavir), Gear Up, Catapult, GMAF, Electrolytes
- Equilibriant, Neem, DHQ, *Selenium, *Monolaurin, *raw garlic
- *Methylated B-Complex, *Liposomal Vitamin C, *Liposomal Gluthathione, *Vitamin D
-NAG, Tumeric, Flaxseed oil
*already taking
If I don't see improvement within a year I'm going to pursue plasmopheris and Rituximab at OMI
Viral load:
- High Coaxsackie B4
- Moderate IgGs for EBV, HHV-6 and Chlamydia pneumoniae
No current test results indicating other conditions such as autoimmune or thyroid problems
Background:
I'm a 30 year old man in Los Angeles. Following an acute viral illness and after being ill with classic ME symptoms (PEM, weakness, disturbed sleep etc) at a 3.5 functionality for 2.5 months I was diagnosed by Dr Enlander (over phone) with CFS/ME. Still getting used to this reality.
Thank you!!
First off thank you to everyone for the support and advice you've provided me so far. This is a special place and I'm glad I found you all.
I have some questions about properly educating my caregivers and deciding on a treatment protocol.
Questions
1. Is there a recommended book / PDF I could provide to my caregivers to help them understand assiting someone with this condition?
2. Does the protocol below seem like a reasonable first approach or should I try something like @Freddd's protocol instead?
3. Should I ask Dr Enlander for a Hepapressin mix without the folic acid and glutathione to help guard against a crash?
My goals are to stop any worsening of my symptoms and of course to move toward recovery.
The rationale of my protocol is to attack things from both the immunomodulating and anti-viral perspectives. I'm also including various symptomatic supplements like @Hip 's anti-anxiety combo.
Let me know if you think I risk a major crash with any of these, or if they'll interact negatively.
Doctors:
- Working with Dr Enlander over phone / email, a local MD / ND, and ad hoc specialists.
- Have an appointment with Dr Chia in May.
Proposed protocol:
- Pacing, aggressive resting, gentle stretching, acupuncture, heart rate / oximeter monitoring
- Hepapressin (or Nexavir), Gear Up, Catapult, GMAF, Electrolytes
- Equilibriant, Neem, DHQ, *Selenium, *Monolaurin, *raw garlic
- *Methylated B-Complex, *Liposomal Vitamin C, *Liposomal Gluthathione, *Vitamin D
-NAG, Tumeric, Flaxseed oil
*already taking
If I don't see improvement within a year I'm going to pursue plasmopheris and Rituximab at OMI
Viral load:
- High Coaxsackie B4
- Moderate IgGs for EBV, HHV-6 and Chlamydia pneumoniae
No current test results indicating other conditions such as autoimmune or thyroid problems
Background:
I'm a 30 year old man in Los Angeles. Following an acute viral illness and after being ill with classic ME symptoms (PEM, weakness, disturbed sleep etc) at a 3.5 functionality for 2.5 months I was diagnosed by Dr Enlander (over phone) with CFS/ME. Still getting used to this reality.
Thank you!!
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