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New UK Petition: Debate in Parliament the lack of an effective policy for the treatment of M.E.

Discussion in 'Action Alerts and Advocacy' started by Jo Best, Sep 14, 2017.

  1. Jo Best

    Jo Best Senior Member

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    Debate in Parliament the lack of an effective policy for the treatment of M.E. https://petition.parliament.uk/petitions/200066

    Only UK residents or British citizens living abroad may sign petitions posted on the UK Government and Parliament website.

    This is a relaunch of a petition created by Ed Lewisohn earlier in 2017, which closed early because of the UK general election. It reached nearly 11,000 signatures in about six weeks, and had support from some MPs. This relaunch is aiming for the 100,000 signatures needed to be considered for a debate in Parliament.


     
  2. Jo Best

    Jo Best Senior Member

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    For ref., this was the petition that closed early because of the general election: https://petition.parliament.uk/archived/petitions/190618

    This was the government's stock response to reaching over 10,000 signatures..

     
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  3. Jo Best

    Jo Best Senior Member

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  4. TiredSam

    TiredSam The wise nematode hibernates

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  5. Hilary

    Hilary Senior Member

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    Signed and forwarded to family.
     
  6. Jo Best

    Jo Best Senior Member

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  7. Janice Hargreaves

    Janice Hargreaves

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    Yep signed and forwarded to family too. Fingers crossed as always.
     
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  8. Jo Best

    Jo Best Senior Member

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  9. Jo Best

    Jo Best Senior Member

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  10. Tilney

    Tilney

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    The last time the petition was running I asked the HOC how my Mother who doesn't have an email address could sign the petition - this is part of the reply I received.


    Thank you for contacting us.

    Providing an e-mail address is an essential requirement when signing a petition. We do allow up to two people to sign a petition using the same email address, so you could use the email of a friend or relative (with their permission, of course). To be able to do this you will have to put the same postcode as the person you are sharing the email with when putting in your details. They would also need to click on the confirmation link sent to them to validate your signature.
     
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  11. arewenearlythereyet

    arewenearlythereyet Senior Member

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  12. Jo Best

    Jo Best Senior Member

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  13. Jo Best

    Jo Best Senior Member

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    Over 2,500 now, and I think the (probably to be expected yet still quite incredible) CMRC/SMC spin on the SMILE trial of the LP in teens shows the political pressure needs to be maintained: https://petition.parliament.uk/petitions/200066
     
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  14. Jo Best

    Jo Best Senior Member

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