heapsreal
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I have had a few dodgy weeks with increased brain fog, headaches with increased blood pressure and sometimes pulse rate. I do have a good cfs doc but can only get into see him every 3 months or so. The rest of the time its being my own doctor or trying to educate a GP about cfs/me.
At first i thought i may have been having a relapse and then when my bp and pulse were all over the place i was thinking i was starting to get hypertensive POTS. I know pots can be very disabling so was not really happy that i was going to have to deal with this. I think most cfs/me people have some form of orthostatic intolerance and tired but wired types like me do have increased noradrenaline which could cause hypertensive POTS. The next thing that crossed my mind was dhea which i had started 3-4 weeks ago may have been over stimulating me and causing my symptoms, dropping the dhea eased symptoms slightly and im not convinced yet that its the cause, maybe exacerbating my hypertension.
While i was at work today with my head throbbing, i had a light bulb moment some how through the fog, maybe like a light house, lol. I realised my face, especially my forehead and around my eyes were aching. I then remembered how when i took sudafed a week ago how it relieved my headaches which shouldnt happen if bp is high. The light bulb moment was a repeat of my sinus infection from the start of the year that took several months to work out, as symptoms arent that different to cfs symptoms. When i was at work i phoned my wife to fill a script i had for abx as well as an abx nasal cream i had from last time, a few months ago now.
What was interesting was when i got home i took my bp 162/102 pulse 102, head was throbbing like a b___h. I then used a sinus spray that helps to open them up and relieve the pressure, i gave it an hour and took my bp again 140/90 pulse 90, still had a headache but not as bad, mm i think i worked out what my problem is. I then smashed down my abx and stuffed my nose with the abx nasal cream, dam i hope im right! Looking back it is very similar to the beginning of the year when i had a sinus infection, same head pain, same strange sleep problems where i wake every 2 hours etc very much like a worsening of cfs symptoms. Many sinus infection u dont get a runny nose and i havent had one, right now after opeing up my sinuses with a spray im now starting to get a trickle of yuk out of my nose, so probably really jammed up, especially to increase my bp from its normal 125/ to 160/-.
If everything pans out ok with abx and i get over this sinus issue, i will look at trialling dhea again as it did help energy, but this time i will keep an eye on my bp just in case.
Like most people with cfs/me, we are mostly navigating through this illness on our own and its hard to tell whats causing certain symptoms and also many of us do the same thing with treatments where its trial and error. if the medical community were switched onto cfs issues, this wouldnt be as bigger problem as we find now. We have to educate ourselves because not many others can help us, we then have to be careful not to sound to smart about our condition or wessely types will say we have an illness belief which is crap, its just that the only people out there that can help us is ourselves mostly, with some assistance from a few good doctors out there which are hard to find for many.
If i still feel like crap in a weeks time, we will see what diagnoses i come up with then??????
cheers!!!
Dr Heaps
At first i thought i may have been having a relapse and then when my bp and pulse were all over the place i was thinking i was starting to get hypertensive POTS. I know pots can be very disabling so was not really happy that i was going to have to deal with this. I think most cfs/me people have some form of orthostatic intolerance and tired but wired types like me do have increased noradrenaline which could cause hypertensive POTS. The next thing that crossed my mind was dhea which i had started 3-4 weeks ago may have been over stimulating me and causing my symptoms, dropping the dhea eased symptoms slightly and im not convinced yet that its the cause, maybe exacerbating my hypertension.
While i was at work today with my head throbbing, i had a light bulb moment some how through the fog, maybe like a light house, lol. I realised my face, especially my forehead and around my eyes were aching. I then remembered how when i took sudafed a week ago how it relieved my headaches which shouldnt happen if bp is high. The light bulb moment was a repeat of my sinus infection from the start of the year that took several months to work out, as symptoms arent that different to cfs symptoms. When i was at work i phoned my wife to fill a script i had for abx as well as an abx nasal cream i had from last time, a few months ago now.
What was interesting was when i got home i took my bp 162/102 pulse 102, head was throbbing like a b___h. I then used a sinus spray that helps to open them up and relieve the pressure, i gave it an hour and took my bp again 140/90 pulse 90, still had a headache but not as bad, mm i think i worked out what my problem is. I then smashed down my abx and stuffed my nose with the abx nasal cream, dam i hope im right! Looking back it is very similar to the beginning of the year when i had a sinus infection, same head pain, same strange sleep problems where i wake every 2 hours etc very much like a worsening of cfs symptoms. Many sinus infection u dont get a runny nose and i havent had one, right now after opeing up my sinuses with a spray im now starting to get a trickle of yuk out of my nose, so probably really jammed up, especially to increase my bp from its normal 125/ to 160/-.
If everything pans out ok with abx and i get over this sinus issue, i will look at trialling dhea again as it did help energy, but this time i will keep an eye on my bp just in case.
Like most people with cfs/me, we are mostly navigating through this illness on our own and its hard to tell whats causing certain symptoms and also many of us do the same thing with treatments where its trial and error. if the medical community were switched onto cfs issues, this wouldnt be as bigger problem as we find now. We have to educate ourselves because not many others can help us, we then have to be careful not to sound to smart about our condition or wessely types will say we have an illness belief which is crap, its just that the only people out there that can help us is ourselves mostly, with some assistance from a few good doctors out there which are hard to find for many.
If i still feel like crap in a weeks time, we will see what diagnoses i come up with then??????
cheers!!!
Dr Heaps