Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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New PACE paper, more SMC spin.

Discussion in 'Latest ME/CFS Research' started by Esther12, Jan 13, 2015.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    Erica Verrillo has done a new (Jan 30) piece on this:
     
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  2. Sean

    Sean Senior Member

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    Exactly. The fatal flaw in their argument.

    All they can ever claim (after exhaustive testing) is the absence of known pathology, but in doing so their claim would be rendered far, far less powerful and seductive.
     
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  3. Dolphin

    Dolphin Senior Member

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    (This may have been discussed before)
    Note that the Mediators paper revolved about two outcome measures: a fatigue scale (the chalder fatigue questionnaire) and a questionnaire that asks about physical functioning (the SF-36 physical functioning subscale).

    The point they raise about symptoms only applies to one (fatigue). It doesn't explain why a subjective measure of physical functioning would be better than a more objective one.
     
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  4. Countrygirl

    Countrygirl Senior Member

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    UK
    Margaret Williams has just had her second comment accepted by the BMJ, leaving Prof White squirming on the hook...........hopefully.

    http://www.bmj.com/content/350/bmj.h227/rr-23

     
    Art Vandelay, Sean, Wildcat and 13 others like this.
  5. ljimbo423

    ljimbo423 Senior Member

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    United States, New Hampshire
    I bought a treadmill and started doing a very slow jog every other day in 1993. I continued to jog for about 10 years. I could never get past 15 minutes of jogging at a very slow pace, my body just could not adapt to the exercise.

    No matter how small an increment I tried to increase the time by. I still could not get past 15 minutes even after 10 years without crashing. It is clear to me now, that my body just could not heal and strengthen like it should.
     
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  6. Dolphin

    Dolphin Senior Member

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    (In case anyone missed it)
    The journalist, David Tuller DrPH, has today posted a substantial piece on the PACE Trial:

    TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study
    http://www.virology.ws/2015/10/21/trial-by-error-i/

    There's an introduction and summary at the start if you don't want to take on the whole thing.

    It's being discussed in this PR thread:
    http://forums.phoenixrising.me/inde...he-pace-chronic-fatigue-syndrome-study.40664/

    ME Network have also posted their own summary piece:
    http://www.meaction.net/2015/10/21/david-tuller-tears-apart-pace-trial/
     
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  7. Dolphin

    Dolphin Senior Member

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    Valentijn, MeSci, Sean and 1 other person like this.

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