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New James Coyne blog post: What patients should require before consenting to participate in research

Discussion in 'General ME/CFS News' started by Sasha, Dec 9, 2015.

  1. Sasha

    Sasha Fine, thank you

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    More here...

    http://blogs.plos.org/mindthebrain/...before-consenting-to-participate-in-research/
     
    Last edited: Dec 10, 2015
    mango, Valentijn, Simon and 13 others like this.
  2. snowathlete

    snowathlete

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    Very good, as all of James Coyne's blogs are. He's a good writer and thinker.
    I'd love to see mecfs research meet these standards going forward, particularly in the UK where the reliability of such research has been so appalling to date. researchers, funders, and charities all have work to do to build patient trust and that's done by involvement and openness.
     
  3. Sasha

    Sasha Fine, thank you

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    Wouldn't it be great if research into our disease became a beacon of what to do, rather than a shameful example of what not to do?
     
    Valentijn, Simon, Woolie and 7 others like this.
  4. worldbackwards

    worldbackwards Senior Member

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    Do you think we'd get nostalgic for the old ways? I can see us all thirty years on, with biomarkers, treatments, treated with a vague degree of respect by doctors, all sat around going "Ah, do you remember the days when they used to call us all terrorists and fake their results? Happy times..."
     

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