helen41
Senior Member
- Messages
- 567
- Location
- Sleepy Hollow Canada
I just heard from the Director of the Marfan Assoc. He is delighted at the idea of a coalition, and said he sees a good fit between the groups I mentioned (Marfan, Rett syndrome, WPI and CFIDS). He says he has emailed each group to try to make it a more official alliance, asking each group to contact their members to vote.
I notice that the CFIDS Assoc removed my Facebook post, but they have posted the Marfan url, and also posted on the Marfan page. Presumably that's an indication that they will be agreeable as well.
Given that there is little time, he asked if we would just go ahead and presume all will agree and do their share in generating votes. Could this be put on the action list? We could get there yet!!!!
Marfan http://bit.ly/jFw0Q4
Rett Syndrome http://bit.ly/fcnRBp...
CFIDS http://t.co/VZEd5Pk
WPI http://t.co/Ev8j2dP
Anyone with a vote left over, please help. I think this is our best hope to get the 1500 votes we need to get to 5th place and earn another $100,000
I notice that the CFIDS Assoc removed my Facebook post, but they have posted the Marfan url, and also posted on the Marfan page. Presumably that's an indication that they will be agreeable as well.
Given that there is little time, he asked if we would just go ahead and presume all will agree and do their share in generating votes. Could this be put on the action list? We could get there yet!!!!
Marfan http://bit.ly/jFw0Q4
Rett Syndrome http://bit.ly/fcnRBp...
CFIDS http://t.co/VZEd5Pk
WPI http://t.co/Ev8j2dP
Anyone with a vote left over, please help. I think this is our best hope to get the 1500 votes we need to get to 5th place and earn another $100,000