• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

National Library of Medicine

Asa

Senior Member
Messages
179
The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, has been a center of information innovation since its founding in 1836.

The world’s largest biomedical library, NLM maintains and makes available a vast print collection and produces electronic information resources on a wide range of topics that are searched billions of times each year by millions of people around the globe. It also supports and conducts research, development, and training in biomedical informatics and health information technology. In addition, the Library coordinates a 6,000-member National Network of Libraries of Medicine that promotes and provides access to health information in communities across the United States.
http://www.nlm.nih.gov/about/index.html

A search for "chronic fatigue syndrome" yields the following: http://vsearch.nlm.nih.gov/vivisimo/cgi-bin/query-meta?v:project=nlm-main-website&query="chronic fatigue syndrome"&x=24&y=15 (link seems to work despite the smiling intruder)

--which I've only glanced through. But I wondered if those who are knowledgeable about ME literature might say what books/work they believe should be in this library (if this hasn't already been done?). For example, is the IOM report part of the library?

Or is there anything that's not biomedical and therefore should not be housed in this biomedical library? (2005 Dutch report? "CFS has been the subject of extensive study over the past 15 years. Within the scientific community, this has led to widespread support for the view that a strict biomedical perspective will not suffice and that the only fruitful approach is a "biopsychosocial" one..." / I don't know the significance of the search results, but this Dutch book/report came up as number 3.)

And I suppose a variety of other search terms should be tried.

Maybe a list of recommended books/work could be submitted to CFSAC for their opinion and then recommendation to the library that such books/work be added.

Thoughts/opinions? (Thank you!)
 
Last edited: