Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Narcotic (Opioid) Pain Medications Relieve Some of my Neurological ME/CFS Symptoms

Discussion in 'Neurological/Neuro-sensory' started by Tristen, Apr 11, 2013.

  1. SueJohnPat

    SueJohnPat Sue

    Medford NJ
    Hi , I have tramadol 50mg for pain. My original diagnosis was fibromyalgia. I have made great improvements over the last two years. I am using clonazepam less and less and for me tramadol actually helps with my “ Brain” cognition well as pain in the morning. As I have gotten better I am now taking mostly just 1 - 50 mg tablet in the morning.

    The tramadol I am asssuming Is giving me a norepinephrine and serotonin boost with a boost of endorphins. I am doing mold avoidance which has greatly affected my overall health. I am hopeful that as my health improves i will need tramadol less and less but for now It makes me able to get up and out of the house so I can walk in the forest to avoid mold. A few years ago I could barely leave my house.

    My doctor actually is in agreement with me that in my case the tramadol is safer than gobbling down ibuprofen and Tylenol ( which have bad effects on liver / blood pressure for me if I need to constantly take them) which are ineffective for this weird fibro/ cfs pain .

    My doctor has known me for 15 years, Others may have major problems with tramadol. If I had issues with opiates I would have probably tried cannabis .
  2. Wayne

    Wayne Senior Member

    Ashland, Oregon
    Hi @purrsian,

    I initially started taking Tylenol 4 for my chronic headaches, and one of the rebound effects was to have a headache "rebound", meaning my headache could get much worse if I wasn't careful with dosing. I noticed that if I tried to take another dose of it within a few hours of taking a 1st dose, my headache would often get worse, and settle in for many more hours.

    But sometimes that rebound effect didn't kick in until I'd taken two or three doses, so there were times when I did take it 2-3 days in a row. I then began to notice that I would get somewhat of a "hangover" feeling. Like some neurotransmitters were off or lower than normal, and would be somewhat alleviated by taking another dose. This was when I felt I began to get some insights into why addiction can happen (sometimes VERY easily) when taking opioids.

    Having heard enough horror stories of how really good people can so easily becoming addicted, I decided I would be extra judicious in how much I used. I normally say I only take it 1-2x/week, but in reality, I'd be surprised if I used it more than 4-5x/month. But when I do, it's quite effective, and I can feel the benefits for 2 or more days at a time. -- A good tool, but in my case, one to be used judiciously.
    I've found mixing DMSO + Magnesium OIl helped considerably in alleviating pressure in my head. Let me know if you have any questions on how I used it. I've noticed most people don't give a lot of consideration to alternative therapies like DMSO, even though I believe it should probably be in everyone's medicine cabinet. I also believe that if it could be patented, it could quite possibly be the highest grossing "drug" of all time. It really does have that many good uses.​
    Last edited: Jan 19, 2018
    purrsian likes this.
  3. purrsian

    purrsian Senior Member

    I have cut out all ibuprofen and the gut issues have decreased. No diarrhoea but still have nausea when I am most fatigued. I now take paracetamol plus codeine 15mg approx twice a week and paracetamol on its own maybe once or twice a week for headaches. I wish I could take codeine more often though, it really lessens my crashes.

    I haven't seen a specialist about the sinus issues as my CT scans are always perfect and no one has referred me to anyone. They just recommend useless nasal sprays and exhausting nasal washes. I don't have much nasal discharge and I'm pretty sure there isn't any drip - it feels much more internal than a normal sinus infection.

    To reflect the difficulties in getting even low dose codeine in Australia now, my partner has chronic back pain from a slipped lumbar disc, something well-documented and completely visible on scans, and even he is struggling to get a prescription for any codeine at all.
  4. kallogann


    i have codeine morphine and tramadol in my cabinet. Yet i never tried them. Opioïds are a bit of a mystery for me.if they work to kick my glutamate nemesis in the butt, i might try them once.
  5. CreativeB


    Interesting thread. I hadn't thought about it, but it might be happening when I take my migraine meds too. I'll need to pay closer attention.
  6. Westley


    what about lyrica? I'm thinking that is safer?
  7. GypsyGirl


    North Carolina
    Regarding which medications are "safer", I find that's entirely about which side effects and risks are acceptable to you.

    I was on Lyrica for 8 months - it made me feel terrible. Brain fog to the point of sounding drunk, increased nerve pain, eventually incontinence. It messed with my nervous system in so many ways.

    I've been on different opiates and had some massive side effects with some (I swelled up with the Butrans patch and had trouble breathing - it felt like dying and I had to discontinue after a few days), mild side effects (feeling a little drowsy/out of it, unpleasant crashes) and virtually no effects with others (mild constipation that can be remedied). Of course, opiates are hard to get, scary to be on because of the addictive/dependency issue, and can mess with your body in different ways.

    Everyone's different. I've found it best to be cautious, but try what you can. Weird things work and we don't always know why. Best of luck!
    CreativeB likes this.

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