Myth: ME is a mental illness + reactions Vink and Chalder/Sharpe/White

[alex3619]

However, I do believe that the main factor is that not many outside the patient community are interested in seeing this situation remedied.

... because they either do not see there is a problem, or are not aware of a problem. Either was its a problem that they are not informed or ill informed, plus not thinking about it rationally. This is why advocacy is important.

 

[Woolie]

The big question is: Are these researchers driven by zealotry and the unshakeable belief that they are right? Or are they driven by pure self-interest?

I'm really not sure. Sometimes I think the cleverness of their dissembling indicates self-interest. But then, well, zealots can do anything in the service of what they believe is the truth. Some of the worst villans of the 20th century have been "true believers" in their cause - they've done much more terrible things than ones just out to serve themselves.

 

[Effi]

Another reaction from Vink (this time in English): http://www.observantonline.nl/Home/...E-trial-misrepresents-their-own-results-again

Tuller's comment to the Sharpe article has been turned into an article as well (as @Esther12 noted) : http://www.observantonline.nl/Home/...icleId/12119/No-scientific-ground-to-stand-on

 

[MEisnotMUPS]

Great to see that David's comment has been put into an article aswell.
Plus our own Dutch Mark Vink, GP and severe ME patient, who has written 2 important articles on PACE, also has a new comment made public, slamming the PACE authors for not representing the truth. (see links previous comment)
for his earlier papers see https://www.sciforschenonline.org/journals/neurology/article-data/JNNB-3-136/JNNB-3-136.pdf (reanalysis PACE data) and https://www.sciforschenonline.org/journals/neurology/article-data/JNNB-2-124/JNNB-2-124.pdf (PACE invalidates BPS model)

Oh and by the way if you want to help the Dutch (who are afraid the influence of the Dutch PACE colleagues / BPS/CGT/GET proponents (some involved in FITNET UK) on the Dutch Health Council ME Committee, will not amount to much good), please help and sign.
https://meisgeensolk.petities.nl/?locale=en

David and Mark are reacting to an article by the PACE authors, who just could not resist spreading more false information in a local Dutch university magazine, after prof. Cohen Tervaert, an immunologist/internal medicine specialist on the same Dutch Health Council committee, did an interview about ME and PACE.
Unfortunately the BPS proponents make up more than half of the committee, they are writing an advisory report on ME to Dutch parliament, so prof. Cohen's voice and influence might be limited.

Your voices would help get the message to the Dutch health Council. No more non evidence based care for patients with ME.
https://meisgeensolk.petities.nl/?locale=en

(you can sign with your name or anonymous, but don't forget to click on the confirmation link in your email after you sign). Thank you so much.