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Myalgic Encephalomyelitis International Consensus Primer Needs to be Distributed to Doctors

Discussion in 'Action Alerts and Advocacy' started by Nielk, Dec 18, 2014.

  1. Nielk

    Nielk

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    Why There Is an Urgent Need to Widely Distribute the Myalgic Encephalomyelitis International Consensus Primer to Doctors
    by Jerrold Spinhirne, December 17, 2014 HERE.
    Continue HERE.
     
    RustyJ, CFS_for_19_years and Iquitos like this.
  2. AndyPandy

    AndyPandy Making the most of it

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    I have given copies of the IC Primer to three GPs so far. None of them were interested enough to read it.

    I have given up on getting anywhere with GPs. Fortunate to now have an ME specialist in Australia.
     
    zzz likes this.
  3. Valentijn

    Valentijn Senior Member

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    Mine browsed the Dutch CCC primer I gave her. I'd done it to specifically refer to the OI bits, and highlighted them to make it easier. But I think she read more than that as well, based on her later attitude/comments. It's a pity she doesn't really have the authority to do anything for me, because she seems both intelligent and generally good-intentioned. Just overwhelmed and powerless.
     
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  4. snowathlete

    snowathlete

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    JaimeS, Dolphin and Valentijn like this.
  5. b-c

    b-c

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    Hi AP and all,
    i'm new here - been reading for a while just trying to get my self across the lay of the land, and understand what's going on for me. So this is my first post.

    AP - are you willing/able to share the name of that specialist?

    I've read the primer cited above and given it to both my primary health professionals. I'm in Australia too (South east coast) and while my GP is supportive, she is 'no expert' and hasn't really tested for a lot of the detail of symptoms involved in ME, which i seem to have. I also have a great herbalist who is helping me a lot and has helped numerous people with ME/CFS - but again, there seems little interest in some of the details and the possibility of distinction btw ME and CFS.

    cheers:)
     
    Jennifer J and JaimeS like this.
  6. JaimeS

    JaimeS Senior Member

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    Welcome, @b-c !
     
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  7. AndyPandy

    AndyPandy Making the most of it

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    Hi @b-c. I will send you a personal message. It's called a "conversation".
     
    Jennifer J likes this.

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