taniaaust1
Senior Member
- Messages
- 13,054
- Location
- Sth Australia
Okay, but you can solve that problem by simply buying a recumbent bike. There are models that go right down to the floor and you can sit in a way that no amount of dizziness would ever prevent you from using the bike.
My ME then would kick in in that case. I dont just have OI but have ME too. I cant do repetitive motions as my muscles exhaust and go into pain. eg If I run, I can only run for 45 seconds before my legs burn out and become so weighted that I then can hardly move them so I have to go to a walk till I get muscle recovery back, I'd have same issue on recumbent bike with muscle burn out severely as that's too repetative and fast. I have same issue if Im scrubbing something with my arms.
Issues still there is Im quickly stopped from doing something within less then a minute due to obviously some kind of severe mito issues in which my body cant keep replacing energy to move. Cause I cant scrub for even 1 minute and have to stop (I start getting issues with it at about the 35-40 second mark) , I dont think that could cause me to probably crash either "easily" in a full body ME way either (it only can leave me at the worst unable to use arms for rest of the night but I stop before I get to that point as its just tooo hard to use my arms, it ends up hurting too much and they jsut wont keep moving). I just cant do it long enough.
I have majorly ME crash one time from peeling vegetables for about 20mins.. That is a slower moment which my muscles can keep doing for a while so that can crash me. I crashed so bad on that occassion that now only did I wipe out but I also ended up with the air hunger thing and felt like my cells were starving of oxygen (breathing issues but I could tell it wasnt my lungs). I would of called the ambulance as Iwas left that bad from 20min of veg peeling, if it wasnt Xmas and would of upset my family had I done so.
All this said, so I can crash at times in a proper ME way but I think its way less then most here as my ME symptoms are so severe.. Severe POTS etc and the severe mito issue? are preventing me from being able to do much at all.. preventing me from being able to cause total crashing with the post exertional thing happening a day or two later.
Instead due to over doing quite often (just with my general living stuff one needs to do), Im just getting a very slow downhill thing going on with my ME (which only is noticable if one compares where I are now with say 4mths ago.. its a consistant slow decline which I know is due to the "little" Im doing now.
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