August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
Discuss the article on the Forums.

My Experience With Dr. Kaufman at the Open Medicine Institute

Discussion in 'ME/CFS Doctors' started by jeff_w, Aug 20, 2014.

  1. Justin30

    Justin30 Senior Member

    Messages:
    1,065
    Likes:
    1,287
    He only diagnoses and sees 18 patients per year....testing i heard was 10k
     
    Kati likes this.
  2. Justin30

    Justin30 Senior Member

    Messages:
    1,065
    Likes:
    1,287
    I couldnt agree more
     
  3. perrier

    perrier Senior Member

    Messages:
    782
    Likes:
    1,394
    Hi Justin,
    I know about 5 people treated by Dr KDM. They were all told they have Lyme. Also, these people know other people and the same results. Some live on Brussels. I should have used the word Many, not every. Forgive me, English is my 4 th language.
     
    Justin30 likes this.
  4. perrier

    perrier Senior Member

    Messages:
    782
    Likes:
    1,394
    I don't like bombastic arrogant doctors. I prefer a quiet fellow. Neither do I want some deep relationship. I expect proper diagnosis, treatment, careful follow, and a doctor who is not running a " mill". I also expect and here is where we have found difficulty, I expect that when something goes wrong with a treatment, that the physician face and address this, regardless whether it's a blood draw, a reaction to a tablet or anything else. This is where I found problems, when something goes wrong.
     
  5. ebethc

    ebethc Senior Member

    Messages:
    1,506
    Likes:
    1,140
    what are enteroviruses? are they related to lyme?
     
  6. ebethc

    ebethc Senior Member

    Messages:
    1,506
    Likes:
    1,140
    re SIBO treatment, does he always rx BOTH rifaxin and flagyl?
     
  7. SwanRonson

    SwanRonson Senior Member

    Messages:
    294
    Likes:
    201
    Alabama
    Not always. Only if it's constipation dominant. Otherwise it's just rifaxamin I believe.
     
    actup and ebethc like this.
  8. halcyon

    halcyon Senior Member

    Messages:
    2,361
    Likes:
    5,537
    No, they are a common RNA virus passed easily through casual contact. Poliovirus is one of the most well known enteroviruses. They have been found to persist in humans for long periods of time and have been linked to ME in numerous studies.
     
    Sancar and actup like this.
  9. ebethc

    ebethc Senior Member

    Messages:
    1,506
    Likes:
    1,140
    what's a dna virus?
     
  10. halcyon

    halcyon Senior Member

    Messages:
    2,361
    Likes:
    5,537
    Herpes viruses would be an example of DNA viruses.
     
    actup and ebethc like this.
  11. ebethc

    ebethc Senior Member

    Messages:
    1,506
    Likes:
    1,140
    what's an rna virus? what's the difference btwn the two?
     
  12. halcyon

    halcyon Senior Member

    Messages:
    2,361
    Likes:
    5,537
    In DNA viruses, the viral genome is composed of DNA, similar to that in the nucleus of our own cells. DNA viruses have to be transcribed into RNA first and then translated into proteins, whereas RNA viruses can often be translated directly as they closely resemble our own mRNA. The outcome is essentially the same (the cell is infected, viral proteins are produced, and the virus replicates), it just has to do with the complexity of getting there.
     
    Sancar, MEMum, actup and 2 others like this.
  13. Erica.N

    Erica.N

    Messages:
    8
    Likes:
    4

    Hi! How long did it take for the results?
     
    MEMum likes this.
  14. SwanRonson

    SwanRonson Senior Member

    Messages:
    294
    Likes:
    201
    Alabama
    Not long. About a week I think.
     
    MEMum likes this.
  15. Erica.N

    Erica.N

    Messages:
    8
    Likes:
    4
    OK !thank you. I'm going to see Dr K in April and I want to schedule how many days I need to stay in the city.
     
  16. Erica.N

    Erica.N

    Messages:
    8
    Likes:
    4

    I do not know exactly how to post here and create a subject. But would you like to know if any of you feel pain in your body or just fatigue? I feel a lot of pain besides all the symptoms. I have consultation with Dr. K in April 2017, do you guys think he can help me with the pain?
     
    MEMum likes this.
  17. Erica.N

    Erica.N

    Messages:
    8
    Likes:
    4
    I'm going to see Dr. KAufman, soon. Would you like to know how much you spent on exams?
     
    Last edited by a moderator: Dec 21, 2016
    MEMum likes this.
  18. Erica.N

    Erica.N

    Messages:
    8
    Likes:
    4
    Hello! I would like to know how much money on average spent on exams? And how long do you think it is necessary to stay in the city for meetings and examinations?
     
    MEMum likes this.
  19. GRACED

    GRACED

    Messages:
    17
    Likes:
    13
    I read that now regular gastroenterologist can order a SIBO test so it is covered by your medical insurance
     
  20. Vojta

    Vojta Senior Member

    Messages:
    163
    Likes:
    311
    Czech Republic
    Hello Erica, I would like to see Dr. Kaufmann next year too. Did you make you appointment recently? I was wondering about how long is waiting time for new appoitments these days.
     
    MEMum likes this.

See more popular forum discussions.

Share This Page