Gingergrrl
Senior Member
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@jeff_w
I suspect something similar for me except over the course of 2.5 yrs vs. three.
When I actually had acute mono in 2012 (with high fever for three weeks, elevated liver tests off the charts, abcess on tonsil cutting off my breathing, severe swollen lymph nodes and very high EBV IgM) I still had a negative "Monospot" test and was told by my then PCP who was very good, that it was not a very high level test with lots of false readings.
Later when the EBV re-activated, I never had a fever and my temp runs consistently low.
I was also still trying to work full-time while planning my wedding b/c I didn't know anything about needing to rest after mono or that it could re-activate. Unless you see a specialist like Dr. K very early, your average doctor will never pick up on this. Thank God we are both getting solid treatment now. Please keep me posted on how you do with your treatment.
I just got lab slip from Dr. K today and in addition to checking vasopressin & renin like I mentioned, he is re-checking all the EBV tests, VZV, IgG subclasses and some other stuff. I have no idea if I have been on Famvir long enough to see any differences in the EBV numbers?
He thinks that over the past three years, the EBV would periodically get partially suppressed by my immune system, but that my immune system was progressively weakening, and so the EBV would reactivate at a higher level.
I suspect something similar for me except over the course of 2.5 yrs vs. three.
I think the EBV infection was missed by other doctors for four reasons: First, because my monospot test was always negative. Secondly, because I didn't have a constant, high grade fever. Third, the fact that I was able to attend graduate school full time while working part time (until January, 2014) appeared to make the doctors take me less seriously.
When I actually had acute mono in 2012 (with high fever for three weeks, elevated liver tests off the charts, abcess on tonsil cutting off my breathing, severe swollen lymph nodes and very high EBV IgM) I still had a negative "Monospot" test and was told by my then PCP who was very good, that it was not a very high level test with lots of false readings.
Later when the EBV re-activated, I never had a fever and my temp runs consistently low.
I was also still trying to work full-time while planning my wedding b/c I didn't know anything about needing to rest after mono or that it could re-activate. Unless you see a specialist like Dr. K very early, your average doctor will never pick up on this. Thank God we are both getting solid treatment now. Please keep me posted on how you do with your treatment.
I just got lab slip from Dr. K today and in addition to checking vasopressin & renin like I mentioned, he is re-checking all the EBV tests, VZV, IgG subclasses and some other stuff. I have no idea if I have been on Famvir long enough to see any differences in the EBV numbers?