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Multiple drug and chemical hypersensitivity

Messages
66
Location
Cornwall, UK.
I take organic vitamins and minerals but I am perticulary interested in the vitamins/minerals mentioned and Choline is very intresting but I have to say we/you are assuming that I have MCAS and I may well have something else? The problem I face is to find the cause rather than treat the symptoms but I do think we/you are on the right track even though I may arrive at a different station if you get my meaning.
Thanks for your input it is appreciated.
wrong-station-we-got.jpg
 

jason30

Senior Member
Messages
513
Location
Europe
I take organic vitamins and minerals but I am perticulary interested in the vitamins/minerals mentioned and Choline is very intresting but I have to say we/you are assuming that I have MCAS and I may well have something else? The problem I face is to find the cause rather than treat the symptoms but I do think we/you are on the right track even though I may arrive at a different station if you get my meaning.
Thanks for your input it is appreciated.

I don't know if you have MCAS, but I do know that you have MCS. MCS = multiple chemical sensitivity.
And I agree with you that finding the cause is the key. It's a journey we all are going through.
But everytime you get a severe reaction from a chemical you have stress and are limited in doing things. And that's the reason that I give some suggestions to alleviate your response to chemicals.
When you do not lower your symptoms then you are constantly busy with the severe reactions instead of spending time to find the cause?
 

caledonia

Senior Member
Hi, I have multiple chemical sensitivities.

I was diagnosed by an environmental medicine specialist. For many years I took neutralization drops and that was very helpful.

Some time after getting my last mercury filling out, my MCS improved enough I quit taking the drops, although I still have issues.

As Jason was saying, it's caused by a fast phase 1 detox and a slow phase 2 detox. The fast phase 1 overwhelms the slow phase 2 and you get symptoms. So you can also try slowing down phase 1 and speeding up phase 2.

Lack of glutathione also factors in.

Vitamin C and milk thistle are helpful for me, but there are many other things to try. Niacinamide is one that Andy Cutler mentions (see the next paragraph). It's the amide form of niacin (as opposed to the nicotinic acid form, aka what is generally called niacin).

The root cause (at least for me) seems to be mercury + arsenic as mentioned by Andy Cutler. I'm following the Cutler chelation protocol, did metal testing and I have those two metals and also lead.

I have similar exposures to you with the paints. Whenever it is I can tolerate sauna, I will be doing that as well to get out the chemicals stored in the fat. If you have low adrenal function, and are losing a lot of electrolytes, and have trouble with summer heat and humidity - probably not a good idea to do sauna yet.
 
Messages
66
Location
Cornwall, UK.
Hi, I have multiple chemical sensitivities.

I was diagnosed by an environmental medicine specialist. For many years I took neutralization drops and that was very helpful.

Some time after getting my last mercury filling out, my MCS improved enough I quit taking the drops, although I still have issues.

As Jason was saying, it's caused by a fast phase 1 detox and a slow phase 2 detox. The fast phase 1 overwhelms the slow phase 2 and you get symptoms. So you can also try slowing down phase 1 and speeding up phase 2.

Lack of glutathione also factors in.:thumbsup::thumbsup:

Vitamin C and milk thistle are helpful for me, but there are many other things to try. Niacinamide is one that Andy Cutler mentions (see the next paragraph). It's the amide form of niacin (as opposed to the nicotinic acid form, aka what is generally called niacin).

The root cause (at least for me) seems to be mercury + arsenic as mentioned by Andy Cutler. I'm following the Cutler chelation protocol, did metal testing and I have those two metals and also lead.

I have similar exposures to you with the paints. Whenever it is I can tolerate sauna, I will be doing that as well to get out the chemicals stored in the fat. If you have low adrenal function, and are losing a lot of electrolytes, and have trouble with summer heat and humidity - probably not a good idea to do sauna yet.
Makes very interesting reading and yes I can't tolerate the sun even for 10 mins and in the summer I tend to sit in doors with a massive fan blowing and I will read up on Andy cutler. And regarding adrenal function a lot of the time I am just so wired out like I have had 10 cups of exspreso coffee it's very horrible.
Thank you.:thumbsup::thumbsup::thumbsup:
 

Cheryl M

Senior Member
Messages
115
Location
North-west England
Hi xak53, so sorry to hear about your misery. Have you been to Breakspear? I know it's quite a long way from Cornwall to Hemel Hempstead (and expensive...) but they are environmental medical specialists so this is their area. (You shouldn't be set off by chemicals in the clinic either since they are fragrance-free and everything - they won't even let the patients wear deodorant...)
 

Daffodil

Senior Member
Messages
5,875
@xak53 my guess is you would be helped by IVIG but I am not sure how you would get it unless you are well-off...

can you see a CFS specialist?

just saw the post about breakspear. my advice is to just go to DeMeirleir in Brussels if you can
 
Messages
66
Location
Cornwall, UK.
Hi xak53, so sorry to hear about your misery. Have you been to Breakspear? I know it's quite a long way from Cornwall to Hemel Hempstead (and expensive...) but they are environmental medical specialists so this is their area. (You shouldn't be set off by chemicals in the clinic either since they are fragrance-free and everything - they won't even let the patients wear deodorant...)
Wow that's the first I have heard of Breakspear.... shame money and distance is an issue for me otherwise I would go it sounds very good looking at their web site.
Thank you for your input :thumbsup:
 
Messages
66
Location
Cornwall, UK.
@xak53 my guess is you would be helped by IVIG but I am not sure how you would get it unless you are well-off...

can you see a CFS specialist?

just saw the post about breakspear. my advice is to just go to DeMeirleir in Brussels if you can
I do see a CFS/ME specialist Ms C Wilson @ the Royal Cornwall Hospital she was one of the 13 people that set up the N.I.C.E guidelines on CFS/ME but as with the entire NHS they are very restricted by limited funding and I question IVIG as it appears to be uncertain what exactly is wrong with me and in my opinion and Dr Byron Hyde and his colleague Dr. Kenny De Meirleir it is very important to find out what the illness actually is before treatments commence.
I thank you for your input it is appreciated:thumbsup:
 

mariovitali

Senior Member
Messages
1,214
Hi @xak53

I've been trying for quite some time now to convince researchers to look at the Liver. Please see below :


Some studies have suggested that exposure to organic solvents may induce liver toxicity[1,2] because most chemicals are metabolized in the liver and toxic metabolites generated through the metabolism are the main cause of liver damage.

Work activities with hepatotoxin exposure are numerous and include chemists, dry cleaners, farm workers, painters, health care workers, nurses, and printers. Organic solvents are used in various industrial processes such as spray painting, paint manufacturing, degreasing, metal processing, aeronautical and auto manufacturing maintenance and manufacturing, as well as various chemical storage facilities. Exposure to hepatotoxins can occur through intentional or accidental ingestion in food or absorption of toxic contaminants through the skin. Contamination includes the ingestion of water, skin absorption via water baths, and volatilization of solvents, and heated bathrooms with a shower of water.


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3374978/

If possible :

1) Get a Fibroscan test
2) Check your Total Bile Acids (Blood Test)
 
Messages
66
Location
Cornwall, UK.
Hi @xak53

I've been trying for quite some time now to convince researchers to look at the Liver. Please see below :





https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3374978/

If possible :

1) Get a Fibroscan test
2) Check your Total Bile Acids (Blood Test)
Once again another very interesting statement and my feeling is YES and I will be pursuing above tests I truly believe that the liver is at the core of part of my problem/s and hepatotoxicity makes perfect sense and fits very well.
Thanks for that information it may be very helpful:thumbsup::thumbsup::thumbsup:.