Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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MP shares article on the importance of listening to patients

Discussion in 'Advocacy Projects' started by Naomi10, Dec 12, 2018.

  1. Naomi10

    Naomi10

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    Dr Paul Williams MP, a GP and member of the health select committee, shared my article ‘The Power of Listening’ on Twitter and Facebook. There has been a huge response.


    The article can be seen here www.alifehidden.com/junior-doctor-training


    “The primary issue in my mistreatment has been a catastrophic failure on the part of professionals to listen. On so many occasions, my voice has been ignored by professionals convinced that anything I had to say was irrelevant, because they knew better. My opinions and views were invalid, for no reason other than that I was the one expressing them. As the patient, I couldn’t possibly know anything about myself or my health.”
     
  2. Mary

    Mary Moderator

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    It's a powerful article, really worth reading. This line struck me quite forcefully:

    I did have a doctor once who believed I was ill. He was able to help in basic ways, getting me on a good nutritional basis, though not much else, but he always treated me with respect, listened to me, was willing for me to try new things I discovered. Unfortunately he died a few years ago and it has taken me awhile to realize how rare someone like that is. I never dreaded going to see him, unlike many if not most other doctors.
     
  3. Naomi10

    Naomi10

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    It is sadly rare to find a doctor who responds with respect and compassion.
     
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  4. jesse's mom

    jesse's mom Moderator

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    Your article is so powerful and so true!
    I have noticed in the past few months some Drs being more compassionate about my illness. Maybe these younger Drs are finally not just thinking we are crazy! Maybe the use of Nurse Practitioners becoming mainstream is really good. They are spending more time listening to me.
     
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  5. andyguitar

    andyguitar Senior Member

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    South east England
    Part of the problem these days is that the medical profession think that tests can answer all questions, and drugs solve all problems. Cant see this changing soon, but I am hopeful that they might start using the right tests and treatments. Eventually. Glad you are being listened to @jesse's mom.
     
  6. Naomi10

    Naomi10

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    That sounds hopeful.
     
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  7. taniaaust1

    taniaaust1 Senior Member

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    So true. I get this to this day with my states disability service.
     
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