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Morgellons: real disease or imaginary malady?

Never Give Up

Collecting improvements, until there's a cure.
Messages
971
A great new response to the article:

K W| Health Business/Administration 10 hours ago

A paradigm shift (or revolutionary science) is, according to Thomas Kuhn, in his influential book The Structure of Scientific Revolutions (1962), a change in the basic assumptions, or paradigms, within the ruling theory of science.

This is what is happening now. As Medical Science is being overwhelmed with chronic illnesses it scrambles to name, let alone treat and the majority of the profession try to relegate it all to "in their heads"-a comfortable cop out.

quote page 1

The researchers could find no evidence of bacterial, fungal, or parasitic infection, and concluded that Morgellons was instead a psychiatric disorder.

Compare this to Dr. Gajdusek who won the Nobel for his work on kuru, a Prion Disease...........

The disease confounded explanation because the mashed brains of the victims, injected into chimpanzees’ brains, produced no symptoms. All known disease-causing bacteria, viruses and parasites produced symptoms within days or weeks. But when the chimps developed kuru two years later, Dr. Gajdusek theorized that a slow-acting virus was at work, somehow not producing the expected immune reactions.

One of his assistants found “scrapie-affiliated particles” — fibrils resembling those in the brains of sheep with scrapie. But it was Stanley B. Prusiner who identified them as tangles of normal proteins that had misfolded and clumped, “teaching” other proteins to follow; he named them prions. They are now recognized as the cause of kuru, scrapie, human Creutzfeldt-Jakob disease and bovine spongiform encephalopathy, better known as mad cow disease. Dr. Prusiner won his own Nobel in medicine for that work in 1997.

The idea that disease could be transmitted by a mere twisted protein — something that lacks DNA and RNA and therefore cannot be said to be alive, is not killed by boiling and is not recognized as foreign by the immune system — turned the scientific world on its ear. Such proteins are now suspected as the causes of dementias and possibly as triggers for cancer.

Oh...and by the way....."mad" King George had Porphyria and "hysteria" has not disappeared (or been demoted to "conversion" in DSM5)........but is actually the paradigm shift occurring in Psychology at present . It has an exploding amount of research and is under the rubric of Dissociative Disorders-Hysteria is better named as complex PTSD.

Joni Mitchell became an iconic figure because her songs always told it "like it is" . No
sugar coating or pretending. If she says she has Morgellans, I believe her.

Finally

“A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die, and a new generation grows up that is familiar with it.”
― Max Planck, Scientific Autobiography and Other Papers
 

Never Give Up

Collecting improvements, until there's a cure.
Messages
971
And another:

Katrina Berne| Psychologist2 hours ago

Once again the medical community is dismissive of an illness they are unable to understand, employing the "If we can't test for it, it can't possibly exist" explanation. Historically such illnesses as polio, MS, ME/CFS, fibromyalgia and pernicious anemia were considered bogus diagnoses, invoking a "blame the patient" stance when the physician doesn't know what the illness is or what to do about it.

Some conditions are diagnosed on the basis of patient complaints in the absence of objective tests but are taken seriously, e.g., migraine, tension headache, dizziness. Why are these considered real while other complaints and illnesses are not? Perhaps because physicians, too, have experienced them.

This repetition reveals a lack of respect of patients. Historically this has happened again and again until an objective lab test or marker is revealed.

Please do not invoke the name of Simon Wessely in conjunction with any unexplained illness, which he will be happy to explain in vague psychiatric terms.

And finally, the tone of this article is inappropriately sarcastic. People with unexplained illnesses are suffering, even if we have no idea why. Those with poorly understood illnesses do not deserve scorn or derision.
 

halcyon

Senior Member
Messages
2,482
I notice that this article has now been edited. Much of the original content regarding CFS is no longer there....
There has been a great deal of criticism of the content and tone of the article which is good to see. :thumbsup:
Excellent, I hope the editor slapped him around a little bit. Sadly they left in the bit about poor open minded Wessely, despite being willing to consider all possibilities, having to x-ray his mail because of CFS patients.