International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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#MillionsMissing Germany, May 2018

Discussion in 'Millions Missing Campaign' started by Joh, Mar 31, 2018.

  1. Joh

    Joh Inactivist

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    We're organizing a #MillionsMissing protest in Berlin. :)

    Please join the Facebook Group #MEAction Deutschland if you're interested to take part (in person or with shoes, texts, pictures): https://www.facebook.com/groups/MEActionDeutschland/

    [​IMG]

    ETA: I called the thread #MillionsMissing Germany, as there might be more visibility actions in Germany apart from Berlin.
     
    Last edited: Apr 6, 2018
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  2. Joh

    Joh Inactivist

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    To everybody who's interested to take part in the #MillionsMissing protest in Berlin, this is the online form you can use: https://docs.google.com/forms/d/e/1FAIpQLSeaBnjnFvkNu1yb3VCQJocZyG1Jio44PnEcspC9pN1DZgINKQ/viewform

    You can let us know in the online form if you'd like to come in person, or send in a poster and/or shoes and/or a message for shoes (we have spare shoes for messages). We also welcome messages from Switzerland and Austria. :)

    ETA: If you're on Facebook, this is the group for more info:
    https://www.facebook.com/groups/MEActionDeutschland/
     
    Last edited: Apr 2, 2018
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  3. Joh

    Joh Inactivist

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    A how-to guide for you with links to pre-designed shoe-messages and posters to fill out (they can be used to make it as easy as possible for you, but of course you can create something on your own :)): https://drive.google.com/file/d/1aPrWPynRA1Vso4dBiedtd68Pu7KuzPkx/view

    We're very much looking forward to your messages. :hug:

    I can't be there in person as I'm home-/bedbound, but I'm very excited and looking forward to the event. It's the second #MillionsMissing event in Germany (after Hamburg in 2016, organized by the German Association for ME/CSF) and the first one in Berlin.
     
    Last edited: Apr 6, 2018
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  4. Joh

    Joh Inactivist

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    Last edited: Apr 6, 2018
  5. mari_gold

    mari_gold

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    @Joh thanks so much for keeping us informed :) :):hug:
    It's a great location for MillionsMissing!
     
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  6. Joh

    Joh Inactivist

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    We designed "shoe messages" (DIN A5) and posters (DIN A3) that can be used. Of course that's a just an offer as support and everybody can get as creative as they like and can design their own messages and posters. :)

    This is what the shoe messages tlooks like:
    Bildschirmfoto 2018-04-11 um 14.05.58.png

    Link to download the poster and shoe message:
    https://drive.google.com/file/d/1aPrWPynRA1Vso4dBiedtd68Pu7KuzPkx/view
     
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  7. Joh

    Joh Inactivist

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    A growing team of volunteers spread over Germany (and the Netherlands) is busy organizing an amazing #MillionsMissing event in Berlin on May 12. :) Some of us from our beds.

    Please send us your message to make ME visible and to show our numbers:
    https://docs.google.com/forms/d/e/1FAIpQLSeaBnjnFvkNu1yb3VCQJocZyG1Jio44PnEcspC9pN1DZgINKQ/viewform
    We're organizing a program, but the messages from (hopefully many) pwME are at the heart of the event.

    Bildschirmfoto 2018-04-21 um 14.02.41.png
    Bildschirmfoto 2018-04-21 um 14.07.32.png

    MillionsMissing Deutschland | #canyouseeMEnow? | 12.05.2018
    www.millionsmissingdeutschland.de | kontakt@millionsmissingdeutschland.de |
    twitter.com/MMissingGermany | www.instagram.com/mmissinggermany
     
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  8. Joh

    Joh Inactivist

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  9. Joh

    Joh Inactivist

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    Program for the #millionsmissing visibility action in Berlin so far:

    - ca. 200 shoes with messages
    - posters created by pwME
    - live performance of two songs with guitar (one was composed for Bedfest, one from Unrest)
    - talks, e.g. by the German Association for ME/CFS
    - 5 No Isolation tele avatars
    - dance performance with cello music
    - picture series from the Lost Voices Stiftung
    - reading out loud messages from pwME
    - info booth, buttons, brochures, fact sheets, banner, our own poster series, #millionsmissing posters
    - ... (more is being planned)

    Send us your message or come in person:
    https://docs.google.com/forms/d/e/1FAIpQLSeaBnjnFvkNu1yb3VCQJocZyG1Jio44PnEcspC9pN1DZgINKQ/viewform

    One of the amazing messages/drawings we got so far:
     
  10. Joh

    Joh Inactivist

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    You can watch three German #MillionsMissing visibility actions on May 12 via livestream on millionsmissingdeutschland.de. They will be streamed on a Facebook page, but no Facebook account is necessary to watch. We're very much looking forward to you joining us. :)

    - Hannover from 10:30 (10:30 am)
    - Gütersloh from 13:00 (1 pm)
    - Berlin from 14:00 (2 pm)
     
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  11. Joh

    Joh Inactivist

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    Dr. Grabowski from the Charité Berlin will attend our #MillionsMissing action in Berlin from 1 pm to 3 (or 3:30) pm on Saturday! :)
     
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  12. Joh

    Joh Inactivist

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    Five no isolation avatars have traveled from Amsterdam to Berlin and arrived yesterday. They will enable five bedbound pwME to be part a of the protest in Berlin.

     
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  13. Joh

    Joh Inactivist

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  14. mari_gold

    mari_gold

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  15. Joh

    Joh Inactivist

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  16. Joh

    Joh Inactivist

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  17. JaimeS

    JaimeS Senior Member

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    Wonderful work! <3 <3 <3
     
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  18. JaimeS

    JaimeS Senior Member

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    Can someone let me know in English what happened in Gütersloh? What was the action there?
     
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  19. Joh

    Joh Inactivist

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    It was a small and relatively spontaneous but highly successful visibility action. It was organized by two people (with support from MillionsMissing Deutschland): shoes, shoe-messages, posters, info brochures. There wasn't a program, but many interested people asking questions and great conversations. Several young people with ME met. Doctors came by and were interested. People asked if they could help and do stuff like go shopping for severe patients. People asked for info and wanted to sign petitions.

    So the visibility action in Gütersloh was an example that it doesn't need to be a huge event to have impact and be successful. Especially in a smaller city it's possible to get attention with a relatively small action.

    You can find some pictures here: https://www.facebook.com/pg/mmissinggermany/photos/?tab=album&album_id=1867276260237120

    Videos (German):
    https://www.facebook.com/mmissinggermany/videos/1867163013581778/
    https://www.facebook.com/mmissinggermany/videos/1867098856921527/
    https://www.facebook.com/mmissinggermany/videos/1867101870254559/

    It was part of MillionsMissing Deutschland (with Berlin and Hannover).

    Edit: And I forgot: Gina Livingston (a singer with ME) who lives in Germany, "donated" her songs and they were played.
     
    Last edited: May 15, 2018
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  20. JaimeS

    JaimeS Senior Member

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    Wonderful! Thank you @Joh!
     
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