• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Michael Morris, MD in San Bernardino treats Chronic Fatigue and FM with T3

knackers323

Senior Member
Messages
1,625
It is also stopping me from being able to sleep. I took 6mcg at 6am yesterday and even though I was tired I didn't get to sleep until about one am last night.

I only took 6mcg at six again this morning and it's now four in the arvo and my chest is still fluttering.

I do also take a small amount of a maoi, parnate at lunch time, would this be affecting the cytomel?
 

drob31

Senior Member
Messages
1,487
Sometimes people have to start with even less like 2.5 mcg. Another thing to take into account is that some people don't do well on straight cytomel and need slow release t3. The thing about thyroid hormone is that it's really hard to mimic your bodies natural production.

What do you cortisol levels look like?
 

mermaid

Senior Member
Messages
714
Location
UK
I am hypothyroid (around 20 yrs) and was diagnosed with ME/CFS many years afterwards (around 6 yrs ago), though the decline had begun before this. As I had been on T4 only for most of that time I began to get adrenals tested and saw an endo who agreed to let me try T4/T3 combo.

My adrenals were not great, but not dreadful (lowish cortisol but DHEA OK). Curiously I felt worse at the time on T3/T4 combo and stopped after 6 weeks because I felt so fatigued - maybe that was the adrenal issue?

Then I suggested to the endo that I might be allowed to try T3 only, and to my surprise, he and the GP agreed, and that was 2 years ago. My adrenals actually did perk up a bit for a while at the time, but I had them retested recently after Christmas as I knew I had relapsed, and they were back to the not very good, but not dreadful state. I am now trying Pregnenolone to see if that will help the adrenals this time as I have only ever treated it with herbs like liquorice, or I did do Paul Robinson's Circadian rhythm method one year, but didn't like waking myself up at silly times.

I have tried reintroducing some T4 into the equation again (twice last year) but each time my hair seemed to drop out badly, and it actually stopped growing on my legs and under my arms - anyone know why this should be? Maybe I will try again at some point this year once my adrenals are sorted out.

It is very hard with both being hypothyroid AND having ME/CFS to know what is what, though I have tried to do all the right things with diet and supplements to make sure it's all optimal for the thyroid (e.g. B12, Vit D, iron, etc)